Update on Brooke 8/4/26
In support of
Brooklyn Hayward's Leukemia Fight
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Brooklyn Hayward's Leukemia Fight
Last week, Brooke had a reaction to one of the chemotherapy medications. It's possible she has developed antibodies to that specific chemotherapy. If she has, they will have to switch to a less effective chemotherapy that is administered 3 times a week for 2 weeks instead of just once. This would mean more trips to the hospital for treatment.
Brooke did perk up over the weekend and felt pretty good for a few days. It was nice to see her laughing and being her goofy self. Unfortunately, she woke up this morning not feeling very well. The nausea continues to be her biggest issue, which is causing her to not eat very much.
Next week is the end of the consolidation phase of treatment. It will depend on her labs next week as to when she will begin the next phase. Hopefully, there won't be much of a delay.
Brooke received her wig over the weekend. She was so excited to finally receive it. We had a Zoom meeting yesterday with the foundation that provided the wig to learn how to care for the wig and fit it properly on her head.
We will be meeting with the genetics doctor soon. We received some results that we will need to determine the next steps. Rusty and I may need to get tested to see which one of us has the gene variant that Brooklyn has and then also having Katelyn tested. Variants or changes in this gene can cause immune system problems like agammaglobulinemia (low or missing antibodies) or increase the risk for types of leukemia like B-cell acute lymphoblastic leukemia, which is what Brooke has.
The oncologist sent out labs last week to Cincinnati to see how the HLH is responding to treatment. The labs that have come back so far show improvement. 🙌
Thank you for the continued prayers, good thoughts, gift cards, donations, cards, and text messages for Brooke. We truly appreciate it all! 💛
Megan
Brooke did perk up over the weekend and felt pretty good for a few days. It was nice to see her laughing and being her goofy self. Unfortunately, she woke up this morning not feeling very well. The nausea continues to be her biggest issue, which is causing her to not eat very much.
Next week is the end of the consolidation phase of treatment. It will depend on her labs next week as to when she will begin the next phase. Hopefully, there won't be much of a delay.
Brooke received her wig over the weekend. She was so excited to finally receive it. We had a Zoom meeting yesterday with the foundation that provided the wig to learn how to care for the wig and fit it properly on her head.
We will be meeting with the genetics doctor soon. We received some results that we will need to determine the next steps. Rusty and I may need to get tested to see which one of us has the gene variant that Brooklyn has and then also having Katelyn tested. Variants or changes in this gene can cause immune system problems like agammaglobulinemia (low or missing antibodies) or increase the risk for types of leukemia like B-cell acute lymphoblastic leukemia, which is what Brooke has.
The oncologist sent out labs last week to Cincinnati to see how the HLH is responding to treatment. The labs that have come back so far show improvement. 🙌
Thank you for the continued prayers, good thoughts, gift cards, donations, cards, and text messages for Brooke. We truly appreciate it all! 💛
Megan
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