Support Registry Update

November 9th

In support of
The Gregor Family
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The last few days Weston has been stable which is good. Saturday afternoon he spiked a fever, labs and tests were ran and came back negative for any infections which is good. The doctors believe the fever is from the withdrawal his is experiencing from coming off sedation meds and other various medications he needed. Weston has been more awake which is nice but I feel he gets very excited and can’t sleep when mom and dad are around. His recent echos and X-rays show no change in his heart size/function. We are still hoping and praying for a miracle! 


We did get the genetic testing back which showed there was a mutation in a gene that came from me but they can not say for sure if it contributed to his heart problem 


Thank you everyone for the gifts that have been sent we appreciate everything more than you could imagine. 


Ty and Ieft the hospital Sunday afternoon to run home quick so we can get some things taken care of. Riggs is sure happy we are home and he is loving his new semi and tractor he bought with his $20 he got at his great uncle Daniel’s birthday!

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