Weston has been doing well, but his weight has been fluctuating up and down. The docs have upped his feed amount and they do not pause his feeds anymore as they want him to be getting calories 24/7 for a few days. His feeds used to get paused when he would have a bottle or during physical therapy. They still let me feed him a bottle 1-2 times a day although with not much stuff going in his tummy he throws up stomach bile a few times a day. 

Weston had his weekly dressing change and echo today. The echo did not show any differences from the week prior and they say that is good. They have removed him from his plavix blood thinner as he is not responding to it. Some kids just don’t respond to it and they have other blood thinners they can put him on as a precaution. There has been no fibrin buildup on his pump which is good. He is now only getting blood draws two times a week. Weston is still working on being able to turn his head to the right since he had that IV taken out of his shoulder. His shoulder and back muscles are also really tense so working with physical therapy to work on all that. 

My friends came to visit over the weekend and it was so so good to see them and be able to get out of the hospital for a bit to do some normal girl things. We had some fun at the MOA and IKEA.