Hannah is now on cardiac floor bed and out of ICU. She had a big day yesterday with a lot of walking and PT. Her left arm started to hurt some after it, which in the past has been one of the symptoms she has during these “events” she had or just with mild exertion since her first event in May. Providers stated it may be her PICC line removal that was bothering her.. with every event she had had alot of exertion the day before and then the following day when she tries to be active an “event” happens( BP dropping, turning white/blue, passing out, irregular heart rate, dizziness etc). Brit had mentioned she felt iffy about the amount PT did with Hannah yesterday and she wondered how she would do today.. well as soon as she got up to walk today, she barley got anywhere and was seeing stars, felt dizzy and not good. They sat her down right away and when the Blood pressure was checked she was 60/40. She had since complained of her throat/neck hurting and a headache which happens at all the events she’s had as well as small exertion moments when she becomes symptomatic and has to sit down. All of this has followed after the first big one in May. Please pray for Brit and Louis and that someone will listen. They are feeling very frustrated at the moment because providers are telling her that all of the “events” are separate , they don’t have anything to do with each other, all caused by some different, and all unrelated . We have pretty strong thoughts of what it could be that is causing this but it needs a catheter to confirm , ideally during exertion which she hasn’t had yet. 

To me it seems absurd to lay out her case without looking at all of her common symptoms and “passing out events” as separate and not connected, she feels all the same things & it always happens the next day after she’s had a big day exertion wise. 

We need to PRAY for someone to not brush off what Brittany is bringing to the table, especially when what we are offering as a possibility would fit what is happening to her! Please pray for listening ears, logical and critical thinking minds and an action plan. 

Thank you all so much❤️‍🩹