Support Registry Update

Day 6 update

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Today was another good day for Harley.

She had a special visit from my good friend Caitlin, who brought all of Harley's Amazon deliveries. To everyone who has sent something, thank you. It truly meant the world to her to open those packages and feel so much love and support.

She also got to spend the afternoon with her best friend, Aleena. Thank you to her big sister, Adriana, and Grandma Margie for bringing her. They surprised Harley with gifts and spoiled Hubie and me with lunch and some much-appreciated zero sugar sodas.

Today we met with the kidney team. Harley's kidneys are currently considered Stage 2. The doctors are hopeful that after her transplant her kidneys will heal and improve, but until then they will be keeping a very close eye on her kidney function.

We also met with the heart cath team. Harley is scheduled for her heart cath on Wednesday at 9:00 a.m., so we would appreciate all the prayers, positive thoughts, and good vibes you can send her way.

Harley was taken down to see the dentist today and received her transplant clearance! Everything looked healthy and good, which was another big step forward.

To top off the day, there was a magician during dinner. Harley got dinner and a show! He even taught her a magic trick, so if you come visit, be prepared—she'll probably want to show you.

Now it's time for Hubie and me to tackle some laundry so we can finally have clean clothes again.

We love all of you so much. Thank you for every prayer, message, visit, gift, and act of kindness. We miss our other girls, Amber and Gracie, more than words can say, but knowing they are surrounded by love helps us get through these days.

As always, thank you for continuing to walk this journey with us. ❤️

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Comments

Spennybacker 8 days ago

Sending lots of love and prayers.