Support Registry Update

What's happening this week

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In support of
Sienna Caines
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Hi everyone!
We are adjusting to Sienna being home and getting into the routine of new/ different schedules. It is a bit chaotic managing two children solo with Sienna's high medical needs and her now being 100% dependent on a caregiver to move and position. BUT, we wouldn't have it any other way than being home!! Sienna has started her therapies again yesterday at Blythedale children's hospital. We are waiting for nursing coverage so that she can start in the school program as originally intended;  in the meantime we are still able to bring her outpatient so she doesn't miss out on any therapy which is key!  

Sienna has now cried several times when being placed in a position that she does not like. This may sound like nothing but for the severity of her brain injury this is HUGE! We are so excited ( but also sad) that she cries when this happens! Steps in the right direction.

All in all we are loving being home and having both of our girls together. They are starting to get to know each other and both very intrigued by one another, haha. 

Thank you again to everyone for donating towards Sienna's intensive therapies and possible future stem cell treatments. We are so so thankful to each and every person for making this a reality to continue to heal her brain and optimize whatever function she may possibly regain. Without the generosity of everyone this simply would not be finanically feasible, so thank you SO much! 

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Comments

JaHanna Kurtz about 1 month ago

So happy everyone is home together ❤️