Welcome & big things happening!
In support of
Sienna Caines
View Support Registry
Sienna Caines
Hi everyone!
Thanks for following along as we transition from CaringBridge to supportnow for updates on Sienna. We made the decision to use this as our page to update everyone and receive donations as CaringBridge solicits donors and 100% of the profits go to them. From now on this is where we will be posting updates on Sienna's heart/ brain injury journey!
For everyone new & returning, welcome!! For those that are new we will give a brief history-
Sienna was born with down syndrome and endured 3 open heart surgeries all before 1.5 years old (with 1 future one). Due to her heart surgeries and medical complexities, we made the decision to move forward with getting a trach for her at 6 months old so that she could later come home from an 8+ month inpatient stay at the hospital. Sienna has had multiple hospitalizations throughout the course of her life and has overcome more medically than any 3 year old should. Most recently, she underwent a cardiac arrest that consequently led to an anoxic brain injury in November 2025. Her MRI shows severe brain damage in the areas of the brain that control all gross & fine motor function, head control etc. She is 100% dependent on a caregiver for all needs, movement & positioning (prior to the brain injury she was able to sit, stand & walk independently with a walker so this is a DRASTIC change). She was admitted in the ICU for a month and then transferred to Blythedale Children's Hospital for rehab on 12/22/25 where she is currently at. We have also welcomed our 2nd daughter, Jayce. Born on 2/7/26. She has been a wonderful addition to our family, albeit stressful & overwhelming navigating a newborn with a child in rehab.
We have some BIG news to share! Sienna's anticipated discharge date from Blythedale Children's Hospital is May 7th! We made the decision to move to White Plains so that we can be close to the hospital as she will continue her therapies there everyday at their day hospital school program. Last week, for the first time since her brain injury, Sienna displayed purposeful movement, attempting to reach for a toy placed in front of her during OT. This is HUGE! She continues to work hard everyday in therapies.
Lastly, Sienna got accepted into the NAPA center for a 3 week long intensive program Nov 30- dec 18th of this year. We are extremely excited and grateful that she got in. We are hoping this is the first of many intensives. Which is why we made the decision to move forward with fundraising as each intensive is costly. However, this paired with her daily therapies gives her the best shot to try and create new neural pathways to regain some motor function and movement post brain injury.
We will post weekly/ bi-weekly updates for everyone following along! Thank you so much for taking the time to read this blog and/or any donations. We are beyond grateful for the community that we have and the ongoing support we've received since Sienna's brain injury.
Thanks for following along as we transition from CaringBridge to supportnow for updates on Sienna. We made the decision to use this as our page to update everyone and receive donations as CaringBridge solicits donors and 100% of the profits go to them. From now on this is where we will be posting updates on Sienna's heart/ brain injury journey!
For everyone new & returning, welcome!! For those that are new we will give a brief history-
Sienna was born with down syndrome and endured 3 open heart surgeries all before 1.5 years old (with 1 future one). Due to her heart surgeries and medical complexities, we made the decision to move forward with getting a trach for her at 6 months old so that she could later come home from an 8+ month inpatient stay at the hospital. Sienna has had multiple hospitalizations throughout the course of her life and has overcome more medically than any 3 year old should. Most recently, she underwent a cardiac arrest that consequently led to an anoxic brain injury in November 2025. Her MRI shows severe brain damage in the areas of the brain that control all gross & fine motor function, head control etc. She is 100% dependent on a caregiver for all needs, movement & positioning (prior to the brain injury she was able to sit, stand & walk independently with a walker so this is a DRASTIC change). She was admitted in the ICU for a month and then transferred to Blythedale Children's Hospital for rehab on 12/22/25 where she is currently at. We have also welcomed our 2nd daughter, Jayce. Born on 2/7/26. She has been a wonderful addition to our family, albeit stressful & overwhelming navigating a newborn with a child in rehab.
We have some BIG news to share! Sienna's anticipated discharge date from Blythedale Children's Hospital is May 7th! We made the decision to move to White Plains so that we can be close to the hospital as she will continue her therapies there everyday at their day hospital school program. Last week, for the first time since her brain injury, Sienna displayed purposeful movement, attempting to reach for a toy placed in front of her during OT. This is HUGE! She continues to work hard everyday in therapies.
Lastly, Sienna got accepted into the NAPA center for a 3 week long intensive program Nov 30- dec 18th of this year. We are extremely excited and grateful that she got in. We are hoping this is the first of many intensives. Which is why we made the decision to move forward with fundraising as each intensive is costly. However, this paired with her daily therapies gives her the best shot to try and create new neural pathways to regain some motor function and movement post brain injury.
We will post weekly/ bi-weekly updates for everyone following along! Thank you so much for taking the time to read this blog and/or any donations. We are beyond grateful for the community that we have and the ongoing support we've received since Sienna's brain injury.
Comments
Jenixie Reyes-Scott
Ilene Hacker