Riley remained intubated last week until Sunday. Sara and the boys were down, and they were happy to see her less sedated and without the tube down her nose. She was kept on a Bi-PAP mask until this morning when they changed her to a nasal cannula. Hopefully, if her Xray images are good, they can remove the cannula and she'll be close to moving to the step-down unit!

Her days have been up and down. She had a pretty good day Sunday, but was pretty grumpy all day Monday. Apparently she didn't sleep well Sunday night. I think coming off of sedation, as well as all her pain medications is messing with her internal clock. She didn't sleep well Monday night either, but she was much more agreeable today. On Monday, she had no interest in OT, and threw one of the toys on the floor. Today, she participated in OT, PT, and Music Therapy! She was even able to do PT on a mat on the floor, and out of the bed! Hopefully all the action today wore her out enough to get some sleep tonight. I left around 10:30, and she wasn't asleep yet, but she was fading.

They are transitioning her medication and feeding regimen to what she'd be on at home. If she does well with this transition, and does well moving off the nasal cannula, she'll start the process to coming home. She's already almost to her first milestone of 2 weeks after her surgery, when she'll be able to sleep on her stomach again. (This will be a big deal for her, since that's her preferred way to sleep.)

Thanks for all your support and prayers. It's been a long road, but we're slowly moving toward home!