Support Registry Update

A few more steps back

In support of
Riley Herman
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It was a hard day for our Riley Roo.  She did end up having to have the bronchoscopy.  They said she had A LOT of mucus in her lungs.  They also said they had to put a saline flush in her lungs, which could result in a fever (so far, nothing!).  They said they got most of it, but there is still some mucus in her lungs which they hope will break up on its own with the help of therapy.

They needed to keep the breathing tube in, so she's reintubated for another 24 hours.  They are hoping to take the tube out tomorrow.

Its been very surreal this weekend.  To go from having some family time on the floor, hearing Riley's belly laughs for the first time in weeks, having her stand up and walk to me to give me a hug, to having her back under sedation with a tube down her throat for the 3rd (technically 4th) time, is really hard.  Keep us in prayer as we navigate another curveball.

As we're being reminded by the people at CHOP from her doctors to those who have seen her grow, she's a tough girl, she's strong, and she'll get through this.  And as one special nurse reminded me, her strength will be evidence as another victory of the Lord.

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Comments

Amy Faga

Thinking of and praing for Riley and her amazing family- and medicalteam too. SO MUCH LOVE to you all...
  • about 1 month ago

Mary Shallow

Continuing prayers for your sweet little girl,Riley. Also for your family to stay strong, May God bless all of you.
  • about 1 month ago

Maria King

Aw, sorry for the hard news. So thankful you have encouraging nurses around you. We continue to pray for dear Riley and all of you.
  • 30 days ago