^{Support Registry Update}

Rollercoaster

In support of
Lincoln Hocevar

Well, it’s been a scary, rollercoaster of a week. While Lincoln was getting chemo over the weekend, we noticed he had new vision changes. He couldn’t write or read anything up close. The doctors didn’t really say anything about it at the time.
After being discharged Monday, Dave sent an email expressing our concerns with this new symptom. Our doctor responded pretty quickly and got us in to see a Neuro Ophthalmologist on Tuesday. We were there almost all day and then went to Scottish for a “quick” MRI.
Yesterday morning the doctor called Dave and told him the tumor has increased in size. She explained this could be due to a few things, but one of which is the tumor may not be responding to treatment or the tumor could be swollen in response to treatment which she has seen before. She then sent us to have blood drawn for tumor markers. It was a very long and emotional day, we tried to stay positive but the thought of the tumor not responding to treatment was terrifying.
The doctor called us last night with the incredible news that Lincoln’s tumor markers are way down and this means the tumor is responding to treatment! The swelling should go down and hopefully the vision changes will resolve over time. So while it’s been emotionally draining and all the doctors and hospital visits have really had Lincoln feeling down, we are beyond grateful for this news.

David Hocevar
almost 2 years ago

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Comments

Sami Ghani almost 2 years ago

Amazing News!!!!!!

Megan Quillen almost 2 years ago

Oh y'all! Praise the Lord he is responding to treatment! We will continue to pray that the Lord keeps his hand on Link and the whole family. We love you all so very much. Link is so blessed to have you two as his mommy and daddy.

Amy.appleman almost 2 years ago

Oh wow, that is quite the roller coaster ride for sure! Poor Lincoln! Thank God the outcome was positive and praying for you all that the treatment continues working!! Hang in there and please let me know if I can help out in any way! xo

3jmomshellb almost 2 years ago

Yayyyyy for the good news!!! WE LOVE TO HEAR IT :) Continued prayers for you guys. Stay encouraged.

Jessp4315 almost 2 years ago

What an emotional journey, but an awesome outcome! Hang in there, much love and prayers!

Dana Bamford almost 2 years ago

That's amazing news! I am so happy to hear the treatment is working!

Janette Fant almost 2 years ago

I’m so glad the rollercoaster ended on a good note! Sending prayers and love to all of you!

Christina R almost 2 years ago

That sounds like a scary few days! I’m so glad the end result was good news!

Esther Sumner almost 2 years ago

Wow that is a relief, but the scare in the meantime!!! Phew. Continued prayers for “Jedi chemo” to do its work thoroughly and completely!!

Susan Richardson almost 2 years ago

Reading through this was quite the roller coaster even! I’m thrilled to hear that the tumor is responding to treatment. It was wonderful seeing him happy and playing yesterday. I had no idea he was waiting on important test results! Continuing to pray!!❤️

Olivia.matheson almost 2 years ago

WONDERFUL NEWS!!!!! you got this Lincoln!!!

Carrie.lindemann almost 2 years ago

Wow— that’s so scary! So happy it ended with good news for you all!

Karen Kowalchik almost 2 years ago

Prayers and God’s Blessings shine over you with love from The Kowalchik Family.

Katie Thompson almost 2 years ago

Oh goodness, how scary! I'm so thankful it's looking okay after all that...! Bless y'all!

Katie Thompson almost 2 years ago

Oh goodness, how scary! I'm so thankful it's looking okay after all that...! Bless y'all!

Npevnick almost 2 years ago

I can only imagine the stress. I’m so glad the tumor is responding. Prayers continue

Vivian DiazEspinosa almost 2 years ago

Thank god, thank you for all the updates I know it has got to be hard doing that as well

Shawn Eovino almost 2 years ago

Definitely a rollercoaster and not one that anyone ever wants to ride twice. I am so glad to hear this though. That is fantastic news!! Thinking of Lincoln and all of you all the time. Chanting shrink shrink shrink in my head. (And maybe a few explicitives for good measure bc this journey sucks) Hugs to you all. ❤️

Malika Terry almost 2 years ago

Praise God that he is responding to treatment!!! Stay encouraged ... sending lots of love from Dani Green and family.

Sandiwaters25 almost 2 years ago

Amazing news! Stay strong Lincoln. ❤️

Sandrajwatts almost 2 years ago

So grateful!

Jenny Morris almost 2 years ago

Oh wow, what a terrible ride! So glad to hear the tumor markers are down. I am new to this link, so am catching up, and would love to help out in any way possible. I’m so sorry you all are having to go through this, but am so happy to hear the good news about the tumor markers! May they continue to decrease even faster than the doctors expect! Much love from the Morris family

Joan Wojciechowski almost 2 years ago

Praise God! Sending continued prayers.

Chris Walker almost 2 years ago

So great to hear! Go Lincoln!

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