Support Registry Update

11/28

In support of
Lincoln Hocevar
View Support Registry
Today is Thanksgiving and I there is a lot to share. I first want to express gratitude for all of you. This road we are on is so difficult and scary.  I have no idea where we would be without all of the love, kindness, and support we are receiving. Thank you again for everything you do to help us get through this.
This update is a tough one. We just learned from Lincoln's latest MRI that the tumor is not shrinking as we were expecting it to. The size of it seems to have stabilized but the fact that it is not getting smaller suggests that the tumor is mostly made up of stuff that does not respond to chemotherapy. For those interested in more specific medical information please reach out and I will share it with you but I am not going to go into it here. The bottom line is that the plan has changed and now will include a surgery to remove as much of the tumor as possible. We got this news yesterday and are heartbroken but hopeful. 
This surgery is a hard one. There are obvious risks. We don't want to go down this path but it is clear that there is no other choice. We are currently discussing the timeline with the neurosurgeon and oncologist. The general sentiment is that the sooner we can do the surgery the better so we may be tackling this next week. We are exploring the possibility of delaying until after Christmas as long as it won't affect Linc in any negative way. 
If we do the surgery next week there is a good chance he will be back home by Christmas but leading up to the holiday he will require a stay in the ICU and then will transition to a part in the hospital where he will continue to recover and get rehab (the surgery typically causes some mild weakness on one side of the body that is temporary). 
There is some good news in this. While our understanding of the tumor has changed and thus so has the plan,  Lincoln's likelihood of beating this is essentially unchanged and remains very favorable. But this next step will be a tough one regardless.
 Lincoln is overall doing well. He has been physically feeling good lately and his mental and emotional state has been positive (barring yesterday but today he is back to himself). He has a very high emotional IQ and seems to be processing things in a healthy way. He has a journal and a punching bag. He has wonderful siblings and friends that he plays and laughs with which is so great to witness. Larkin and I talk with him often and he also has great people to talk to that are not his parents. 
Last week he felt good enough to rejoin his soccer team for the final tournament of the season where Lincoln scored a goal and helped his team along to finish 2nd place!
This is scary y'all. Larkin and I are ok and rolling with the punches. Yesterday felt similar to day one of this whole ordeal but today things seem better. We maintain a vigilant belief that we will all come through this whole and intact. 
Again thank you for all that this amazing community is doing, we are tremendously grateful for you.
 Happy Thanksgiving!

Browse Current Support Options

View Options

Comments

Wendyclyne

I cannot imagine all the emotions and thoughts that this news has brought. I do think you all are an amazing family who have raised kind, loving, intelligent children. Any time I see Lincoln at school he smiles at me and asks how I'm doing... simply amazing. My family and I are praying for you and your family, but especially Lincoln.
  • about 1 year ago

Esther Sumner

That is tough news - arg. Glad it doesn’t affect the outcome though. We will be praying for the surgery. Keep us posted once it is scheduled. 🙏♥️
  • about 1 year ago

Shawn Eovino

Not ideal and definitely scary-but it does sound like good news that the outlook is still a positive one. We are with him and all of you. Sounds like some roblox/minecraft server sharing is in the future-Miles wants me to call. :) I'll message you later this weekend. Thankful he has such an amazing family around him.
  • about 1 year ago

Jenny Dyer

Sending all of our love to Lincoln and the whole family. Please let us know if you need anything!
  • about 1 year ago

Jenny Dyer

Sending all of our love to Lincoln and the whole family. Please let us know if you need anything!
  • about 1 year ago

Olivia.matheson

We love you all so much!!! Of course he scored a goal! MVP= most vunaffected by a brain tumor player!
  • about 1 year ago

Jessp4315

Sending you, Lincoln, and your entire family much love & prayers for a speedy & easy recovery❤️
  • about 1 year ago

Malika Terry

Thank you for sharing and for your openness during such a challenging time. Your strength and Lincoln’s resilience continue to inspire all of us. While the news about the surgery is tough, it’s encouraging to hear that Lincoln’s chances remain strong and that he’s feeling supported and loved. Please know that we are here for you and your family. Sending you love, prayers, and unwavering support as you navigate this next phase. Wishing you as much peace and comfort as possible.
  • about 1 year ago