Support Registry Update

September 11th - 14th 2024 - Mott PICU

In support of
Liam Slattery
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Two and a half weeks went by on Liam's new ASM. On the morning of Sept 11th, at 9:10 am he stopped breathing when Mom was home alone with him. 911 was called and first responders arrived at the house. We reached out to his neurologist and increased his ASM dose. We agreed, if he had another seizure we would have to go to the emergency room. 

At 5:10 PM Liam stopped breathing and we took Liam to the hospital. Upon arriving he started to seize every 15-25 minutes from 8 pm to 10 pm. He had a total of 10 seizures on this day. 

After three more days in the PICU the doctors added a second ASM to his daily regimen and still could not find a cause. It was at this time it was suggested to do genetic testing. We wanted to help our son in any way possible so we decided to do a full genome sequencing. 

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