Support Registry Update

August 26th - 29th 2024 - MUSC PICU

In support of
Liam Slattery
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After three months of no issues, we were on a family vacation when disaster struck. On August 26th, we were in Charleston, SC and Liam stopped breathing again. We took videos and sent it to our care team back home in Michigan. By the time they were able to review what we sent, he had stopped breathing over 10 times. 

We immediately rushed to the children's hospital where he had another 15 confirmed apneic seizures. Our entire family spent three days in the PICU (Pediatric Intensive Care Unit). It was at this time that Liam was diagnosed with epilepsy. 

Additional labs and imaging were conducted with no conclusive evidence as to what was causing his seizures. We were released from the hospital with twice daily anti seizure medication (ASM) and were provided emergency rescue medications in case of a seizure onset on the 13 hour drive home to Michigan. The neurologist informed us that when it comes to epilepsy every case is different and the ASM's are entirely trial and error. There was a good possibility that they would not get it right on the first attempt. 

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