Support Registry Update

One month post stem cells

Kolter Kesling "Kolter Strong" photo
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Kolter Kesling "Kolter Strong"
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A little Kolter update 🤍
We have some really exciting things to share about this boy. 🥹
The biggest takeaway from stem cells so far has been HUGE for us… Kolter can now get himself up and into a sitting position by himself. His core is getting so strong, and all of his therapists are SO excited about the progress he’s making. It might seem like a small thing to some people, but for us, watching him figure this out and become a little more independent is everything.
And honestly, he has a whole new fire in his eyes now that he knows he can do it. 🥹🔥
We’re also starting a new chapter with his seizure medications. With Dr. Proefrock guiding us through it, we’re very carefully and gradually weaning him off of his seizure meds. We’re taking it one step at a time and staying in close communication with him throughout the process. He is also specially compounding Kolter’s medications for us, which has been really cool and something we’re very grateful for.
In October, we’ll head back to Arizona for PRP (platelet-rich plasma), with the hope of supporting some of the new stem cells that may have gone dormant.
Before then, in just a few weeks, we’re heading to Synergy Functional Neurology for a one-week intensive! He’ll be doing 2 hours of therapy and 1 hour of HBOT each day. We are REALLY looking forward to this, and we’re even getting to take one of his therapists with us for the day! 🥹
We’re still doing therapy once a week with our OG girls at IU and DMI 1–2 days a week with our mega bestie. We are so lucky to have so many people who love this boy and continue to pour into him.
This kid is showing us some BIG progress, and we are just so excited to see what the rest of this year brings. We’ve learned to celebrate every single little thing, and right now, we are celebrating sitting up by himself. ❤️
As always, thank you guys for following along with Kolter, cheering him on, praying for him, sharing his story, and donating when you can. We truly could not do this without all of you.
Keep going, buddy. We’re so stinking proud of you. 🤍

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Comments

Patrick Barber 8 days ago

What a great praise report! Go Kolter!

Lisaraderstorf 8 days ago

Kolter’s progress is such a beautiful reminder that every victory—big or small—is still a miracle in motion. What an incredible milestone for him to sit up on his own. That spark in his eyes says everything. 🤍 “For I am confident of this very thing, that He who began a good work in you will carry it on to completion” (Philippians 1:6). God is clearly strengthening this little warrior day by day. Cheering him on, celebrating every step, and praying over all the amazing things still ahead. Go Kolter, keep shining, buddy. ❤️

Lillian Lanning 1 day ago

A PRAYER..... Thank you GOD for all you have done, all you do and all you will do for this child and the family. Continue to close old doors and open new doors for his healing. We believe you will continue to guide them and provide them with all he needs. We are blessed with so many of your blessings. By the grace of GOD and the blood of Christ all things are not only possible but WILL happen with faith, love and compassion. All praise and glory belongs to GOD! THANK YOU! AMEN! I am so very happy for you and your son. Continue in faith. When it seems hard or not going right remember with GOD and faith the size of a mustard seed miracles happen. Believe GOD will heal him and he will make it happen! Hugs to all of you.