Support Registry Update

Update

In support of
Koehn Family
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Hello all,

We are still here in the ICU. Good news tho, Emmy is off the IV blood pressure medicine! If she can stay off for 24 hours we will likely get moved to the oncology floor tomm. 

She got up and walked in the halls yesterday and will continue to work with PT on her strength.

Her belly pain has also improved and she's eating EVERYTHING. Shes currently eating guacamole at 8am, and has already had 2 eggs and 2 bowls of cereal. We are still on a low fat diet but the gluten free diet has been removed from her plan. However, we are still using gluten free substitutes when possible. 

Her Oncology team started her on her oral chemo (6mp) on the Tuesday and things are going well. She will get IV chemo next week and then we will talk about when to re-introduce the chemo that is given via lumbar puncture into her spine. 

Please continue to pray for continued improvements and no complications with the chemo that is being restarted. 

Thank you. 

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Comments

Annette Delgado

The thought of Emmy eating bowls of cereal and guacamole makes my heart smile. Continuing to hold this precious little warrior up in prayer!
  • over 1 year ago