Support Registry Update

Admission Day 94. (ICU day 29)

In support of
Hope for Colby
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We have a living donor match (love you Amy!)… and yet I still can’t seem to catch my breath. 
 
Most recently, Colby has had everything from a cold, to internal hemorrhage. The list of complications seems endless, just when I think we’ve seen them all. 
 
“Stable” is something we aim for, and achieve some days. And then another blow comes and knocks us back down. 
 
Edmonton has decided to hold off on transplant at this time. They will reconsider as per his status come November is what we’ve been told. 
 
The prognosis for liver transplant post pancreatitis (and also, candidemia) is very poor. The surgeons say all of their experience operating after severe pancreatitis has been extremely risky, highly unsuccessful, and they don’t feel operating at this time would be a good idea. 
 
We have asked for a second opinion from Sick Kids in Toronto. While we await to hear from them, I’m aware that the pediatric transplant world is small. I assume they are already aware of Colby’s extremely fragile state and complex case. 
 
After a tumultuous day Sunday, Colby has “stabilized” again. I’m so grateful for this, but it is such an absolute mind game to see him laughing and smiling with the nurses, when I’ve thought we could lose him so many times already. 
 
I’ve said it before, but end stage liver disease is no joke. I don’t know a world where any of this makes sense. 
 
 The reality is, Colby’s condition is fatal. Each complication, complicates things for him more. Transplant is the only option, and even that feels far away and almost unattainable. 
 
Updates are hard in a position like this, but I know many of you care so deeply for our guy. Thanks for all the love, always 🩵

Steph Crofts
5 months ago

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Comments

Sean H

Praying for this little warrior this moment Steph. Thank you for the update. You are not alone . Amy has her bags packed for you !
  • 5 months ago

Robin Somji

I know that was so hard to write. Loving on you. In my heart and mind every day.
  • 5 months ago

Sacabral

Love you guys. Thank you for the update. Continual prayers for Colby and you all.
  • 5 months ago

Leanne Bryce

Oh Steph. My heart breaks for you. I wish there was more we could do for you other than pray for a miracle. Jesus we lift Colby up to you Lord, have mercy on his little body God. Heal him completely in Jesus Name! Amen.
Love you all ❤️
  • 5 months ago

Maryam Groef

We're praying so hard for Colby and all the family. Everything, Always!
  • 5 months ago

Deborah

PRAYERS AND LOVE
  • 5 months ago

Kotzemarcelle

Still praying. Thanks for the update. Colby is such a fighter
  • 5 months ago
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