Friday we received word that Edmonton wants to operate. I’ve been hoping and praying all week that we could just get him there so they could see how well he’s doing when he’s stable, because we know that on paper, it’s bad. We know that. But to know Colby, and to see the resilience this child has, is something extraordinary. I’m told that reaching out for that second opinion seemed to be just what was needed. 

Monday, Colby and I will be transported by plane to Edmonton to join their PICU as we prepare for transplant on THURSDAY Sept 18! 

Amy, Colby’s liver donor, and her family will head up Wednesday. Please pray for them as they jump in with both feet, fully in on the fight with us for Colby!  

We’re in a bit of a bubble now, keeping Colby as absolutely safe as possible before surgery… it really does feel down to the wire with days to go before this life-saving operation. 

I can’t believe I get to say that - “days to go!” 

Until Friday, I still didn’t know if we would ever get the chance to TRY even. I’m so thankful for the change of heart. The opportunity. 

Monday will be day 100 of this admission. We have months ahead still, and as much as I’d like a roadmap, I have learned this summer to fully surrender. It may be hard to understand how one can fully surrender and stay in the fight at the same time… but let me tell you, the surrender is to the fight itself, not from the fighting. I’ve always been all-in for Colby, but I have never had to be the mother I am today until now. And thank God for that. I would wish what we have left behind and have ahead yet still on no one. Do I wish Colby was born healthy? Absolutely. I would trade places in a heartbeat to take his suffering as my own… but because I can’t, I carry it with him. I hold his hand and stroke his hair and remind him I’m with him no matter what and though it all. 

He is brave. He is strong. He is a warrior. And the fight continues! 

Thanks for cheering us on always!