Our warrior has had some incredibly difficult days.

She’s battling wave after wave of symptoms—nausea, stomach pain, vomiting 🤮, diarrhea 💩, and fevers—on constant rotation.

On top of that, we’ve had growing concerns:

high blood pressure, liver function

pain levels that morphine and oxy are not fully controlling,

and watching her push through when her body is clearly exhausted.

She is fighting hard.

And we are advocating harder asking all the questions, adjusting plans, and standing guard over her care every step of the way.

She doesn’t like to receive medication due to the drowsiness she feels all day. The medication does relieve the symptoms for a small duration but the longer outcome of drowsiness all day is what Jazmyne dreads. One medication helps relieve a symptom only to bring on 2 other side effects. 

The NG tube is what’s causing discomfort. Any movement causes it to move in her throat which instantly brings on 🤮. The NG tube feeding is causing 💩. New game plan stop the NG tube feeding and switch to TPN feeding via IV.

TPN means Total Parenteral Nutrition a life-sustaining intravenous (IV) feeding that bypasses the digestive system to deliver essential nutrients (carbs, proteins, fats, vitamins, minerals) directly into the bloodstream, used when you can't eat or absorb nutrients through their mouth or gut.

Mucositits is present in Jazmyne mouth. Redness, swelling, burning pain, mouth sores/ulcers, which make it difficult to eat, drink, or talking. Mucositis is extremely painful. Inflammation, redness, and ulceration of the mucous membranes lining the digestive tract, most commonly occurring in the mouth (oral mucositis) often affects the mouth and throat, it can affect the entire gastrointestinal tract, from the mouth to the anus.Jazmyne has all the pain and disco associated with mucositis. 

Jazmyne also dealing with the anal fissures. These painful, thin tears in the lining of the anus are often caused by the irritation and straining associated with prolonged diarrhea along with the lining of the rectrum that is inflamed with mucositis.

To help with the pain and discomfort she is on a morphine drip along with PCA. PCA means Patient-Controlled Analgesia, a system where patients self-administer pain medication via a pump by pressing a button, providing quick, controlled relief.

To help her avoid having to swallow when it’s uncomfortable, she also has a mouth suction wand she can gently use to clear saliva from her mouth as needed.

After 12 days of Jazmyne in this excruciating pain was able to finally be heard to include breastmilk into her NG tube feeding. 7 years ago Jazmyne did not get Mucositis, and I know its because  I was  breastfeeding her. Breastmilk is GOLDEN in my book when a child is ill.  

It has become painful for Jazmyne to vocally expresss her needs to us. I made her a word picture identifier for her to just point what she needs.

Normal blood draws are done at 3am, to determine if any product is needed (blood or platelets). She has needed platelets for the last 5 days. Her platelets and HGB levels have beenof concern so now her blood draws are every 6 hrs. 

We are all struggling in one way or another. Nothing prepares you for watching your child physically suffer…the cries burn in my ears hearing her cry out, “It hurts, it hurts,” as the tears stream down her face,

her red hands clenched tightly in mine.

The agony, the pain, the anger—it is beyond heartbreaking.

So I pray her through it.

I breathe her through it.

When her strength is gone, God becomes her strength.

When my heart is breaking, He holds us both.

I cling to the truth of God’s Word. I pray His promises:

And somehow—through tears, through prayer, through breath—

He carries us through.

—2 Corinthians 12:9

We are doing everything possible to ease her discomfort and pain. We know this is all part of the process for her body to graft the transplant. Even so, my momma heart aches with every cry and every tear. We continue to trust God is holding her through it all, giving her strength moment by moment. 

“When you pass through the waters, I will be with you.” Isaiah 43:2

The other night, I had one of those cry sessions in the shower, you know the kind where the tears are so heavy you can’t tell where the water ends and the tears begin.My tears of sadness and desperate prayers slowly turned into remembrance… remembering the scriptures that have been so prevalent, the words our prayer warriors continue to send us.

“We are pressed on every side by troubles, but we are not crushed. We are perplexed, but not driven to despair.”

‭‭2 Corinthians‬ ‭4‬:‭8‬ ‭NLT‬‬

“The Lord is close to the brokenhearted; he rescues those whose spirits are crushed.”

‭‭Psalms‬ ‭34‬:‭18‬ ‭NLT‬‬

“Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God.”

‭‭Philippians‬ ‭4‬:‭6‬ ‭NIV‬‬

I had to pull myself out of that slump. I refused to go to sleep carrying burdens that were never meant for me to hold.

I released—again—my plans, my intrusive thoughts, my fears, and my own agenda. I surrendered them at His feet. I declared that if God has set the path before us, then He has already gone ahead of us and equipped us with everything we need to endure this mountain. 

My tears turned from mourning into praise. They became warfare. 

“For though we walk in the flesh, we do not wage war according to the flesh.” 

2 Corinthians 10:3

I rebuked the enemy and every plan formed against our family—every assignment meant to bring fear, confusion, harm, or defeat. 

“No weapon formed against us shall prosper.” 

Isaiah 54:17

I claimed healing over Jazmyne—her body, spirit, mind, and emotions. I spoke life and restoration over every cell. 

“By His wounds, she is healed.” Isaiah 53:5

I claimed a sound mind, discernment, wisdom, and rest for Greg and for me. 

“For God has not given us a spirit of fear, but of power, love, and a sound mind.” 

2 Timothy 1:7

I asked God to refresh our spirits in His promises, to guard our hearts and minds with His peace, and to keep us aligned with His Word—so that we remain aligned with each other. 

“The peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.” 

Philippians 4:7

We stand on His promises. We are covered. We are equipped. And this mountain will not defeat us.

PRAYER REQUEST:

-Jazmyne body heal from mucositis from the tip of her tongue done  her esophagus down to her stomach, intestines and rectum

-no fevers

-Jazmyne body produce platelets and red blood cells

-Jazmyne spirit emotionally and mental be lifted