Hi!

I’ve been quiet lately, but not because anything is wrong. In fact, it’s quite the opposite! Everything has been going wonderfully for Harrison! Sometimes that brings its own kind of anxiety as we brace for whatever the next battle might be. But right now, we’re trying to soak in the positive moments and the chance to catch our breath after so much past grief. There are days when we forget that anything is even wrong with him, and honestly, that’s how it should be. We do not take for granted how well he is doing. 

 

Harrison has started moving all around the house. He is crawling everywhere and even taking steps with his little toy walker. Some of these milestones require weekly therapies and interventions, but they are things we didn’t expect him to reach this soon. He is exceeding everyone’s expectations. One of our favorite things about Harrison is his stubborn determination. You’d better not tell that baby “no,” and you definitely shouldn’t turn your back on him because he will take off into the next room to find mischief. He keeps us on our toes in the best way. 

 

His G-tube surgery went beautifully. What was supposed to be a three-day hospital stay turned into only about 36 hours. During that hospital stay, they were able to do a semi-sedated echo to get a clearer look at his heart, and those images have now been sent to Boston for review. Tate and I are currently waiting for dates so we can join a conference call with both the Boston team and Harrison’s Atlanta team. There has been some recent disagreement about the timing of surgery, but we’re hoping this latest echo will help clarify his status as a potential candidate for the double switch. 

 

Many of you have asked what the “double switch” actually involves, and we appreciate your curiosity. Harrison has ccTGA along with other structural differences in his heart. Did you also know that his heart is centered in his chest!? The surgeries ahead may include not only the double switch, but also a potential valve replacement. For anyone wanting to read more, I’ve included a link below. Harrison will not need the Rastelli procedure. There are other procedures, as well as the possibility of a Nikaidoh, that are part of his surgical pathway. (https://www.stanfordchildrens.org/en/services/complex-biventricular-reconstruction/treatments/anatomic-repair.html)

 

We deeply appreciate your continued prayers and ask that you be specific in how you speak to Jesus on Harrison’s behalf. If you ever want to know how to pray for us, please reach out because I can always give a long list lol. Current prayers include: 

 • That Harrison continues progressing with developmental milestones and weight gain. 

 • That we can get our conference call with Boston scheduled soon so Tate and I can find clarity, get answers, and feel prepared. 

 • That we can stay focused on all the good that’s happening without living in fear of the future. 

 • That we remain safe as we travel to multiple weekly appointments, and that each appointment brings us closer to Harrison being a double switch candidate. 

 

We believe God absolutely can heal, but we also know He doesn’t always choose to heal in the miraculous way we might hope. At this point, we know God is not promising a physical healing of Harrison’s heart. Instead, we are trusting Him for His strength, His presence, and His goodness in every outcome. We’re asking Him to work in ways that bring life, peace, and hope even if that looks different than a miracle because God’s perfect plan has already been revealed. 

 

Our final prayer request is that we continue to have faith in God and trust the way He chooses to show up. Even the smallest mustard seed of faith can move mountains (Matthew 17:20-21). We pray that you will share in that faith and continue celebrating Harrison’s precious gift of life right along with us.