We’ve had the chance to visit with lots of friends and family lately, and it’s reminded us how many people love Harrison and want to stay updated. At times, keeping everyone in the loop feels like a full-time job, so we’re incredibly grateful for this Support Now space that allows us to share updates in one place and gives you the opportunity to pray for our specific needs and help how you feel led. 

 

I've been quiet lately, but not because there’s nothing to share. In fact, Harrison keeps us very busy, and things change fast with his health. His current rotation of appointments includes GI, ENT, SLP, cardiology (of course), urology, electrophysiology, physical therapy, and feeding therapy. Whew! 

 

Lately, the focus has been on Harrison’s feeding challenges and low energy levels. He’s been diagnosed with a few eating-related issues that are commonly seen in heart kiddos. As many of you are aware, his weight significantly impacts both the timing and success of his next surgery. Unfortunately, some of the interventions we hoped would help haven’t been working as well as expected, and he’s struggling to maintain the energy to eat or play for long. Right now, we’re faced with the tough possibility of surgery being earlier than planned or risking further decline while we wait for him to gain weight. It’s not a simple choice because going into surgery underweight greatly increases the risk of complications and a harder recovery. But watching him wear out so easily is incredibly painful to watch. 

 

Through all of this, Harrison continues to be our bright and bubbly boy. He never meets a stranger and remains so trusting, even in situations where he has every reason to be terrified. 

 

We’d love your prayers as we consider a few big decisions. 

First, we’re weighing whether to switch from the NG tube to a G-tube. While the G-tube requires a minor surgery, it would be less traumatic long term. Right now, his NG tube frequently comes out (he's grabby), and re-inserting it is heartbreaking every time. He is also having trouble processing a normal volume for his age, and his nutrition is being affected. The G-tube would also mean no more tape on his precious cheeks. 

 

Life right now involves constant conversations, follow-ups, advocating, and asking hard questions. This is all while trying to stay grounded in our faith, be present & focused in daily life, and be objective. It's harder than it sounds.

 

Please pray for clarity for Tate and me, and for us to be united in our decision-making. Please pray for Harrison’s team to be led with divine wisdom. Pray that we put God first in all of this, and for strength as I wrestle between trusting my gut and doubting. 

 

Thank you for loving our family so well.