Hi everyone, 

 

We wanted to share an update on our sweet heart warrior, Harrison. These past few months have been full of ups and downs, but through it all, Harrison has continued to show us what true strength looks like. 

 

As many of you know, Harrison was born with a complex congenital heart condition called ccTGA, along with pulmonary stenosis, mild tricuspid valve regurgitation, and complete heart block. He’s undergone multiple surgeries, including pulmonary artery (PA) banding, PDA ligation, and now lives with a pacemaker. 

 

Harrison has spent more time in the hospital than any little one should, including several inpatient stays at CHOA due to viral infections, but they have all been brief. He also continues to go to multiple doctors' appointments and therapy sessions every week, but is surpassing all expectations and goals. He keeps us busy!!

 

We’re currently preparing for the next stage in Harrison’s journey, which will include another surgery in the coming months. While this is scary and overwhelming , we are so grateful for the incredible care teams who walk this road with us and for each of you who continue to hold our family in love and prayer. 

 

Your donations, messages, meals, and support have been a lifeline during this long and emotional road. Whether you’ve contributed financially or just sent a kind word, you are part of Harrison’s story, and we are endlessly thankful. 

 

We’ll continue to share updates here as we know more, especially regarding travel dates or any other unexpected inpatient visits. In the meantime, if you’re looking for other ways to support, we’ve created a few need-based items and ways to donate.

 

Thank you for being in our corner!