Support Registry Update

Navigating Fevers, Counts, and Next Steps

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Harper's Recovery
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Yesterday started out as such a good day for Harper. Her energy was up, she played, and she didnโ€™t even need a nap. Then, right at bedtime, she spiked a fever ๐Ÿซ .ย 

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We brought her to the Emergency Department where we learned her hemoglobin had dropped to 6.3. She was admitted for IV antibiotics and a blood transfusion.ย 

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Thankfully, all viral testing came back negative, and her white blood cell count is starting to improve. Her platelets, however, have barely budged, which makes chemotherapy this week unlikely.ย 

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Her oncologist is already working through next steps. They plan to check Harperโ€™s IgG levels to see if she may benefit from an IVIG infusion to help support her immune system. He also wants to switch her upcoming Cycle 3 chemo to Cycle 2 insteadโ€”one she hasnโ€™t had yet and that is less likely to severely drop her platelets. Heโ€™s also comfortable proceeding if her platelets reach 50 instead of the usual 75.ย 

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Weโ€™ll go back in on Wednesday for another count check, and possibly an admission if her platelets rebound (fingers crossed ๐Ÿคž).ย 

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This continues to feel incredibly daunting. We want Harperโ€™s body to recover, but we also want to make sure she gets the chemotherapy she needs to fight this cancer.ย 

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Iโ€™ll be sure to share another update on Wednesday. Thank you, as always, for supporting and loving our girl.ย 


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Comments

Cheryn Fogarty 6 months ago

Thanks for the update Lauren. All of you are in our prayers.

Charlie and Maria Maira 6 months ago

Thoughts and prayers as always โฃ๏ธโฃ๏ธ

Gwenn Seaman 6 months ago

Prayers for you all!

Jane Moore 6 months ago

Praying for you Harper, strong beyond measure you are ๐Ÿ’œ

Julie Giglio Manganiello 6 months ago

My heart hurts when I think of Haroer going through this. She is in my thoughts so often. My prayers for her and her family are constant. As I said in previous messages, I believe in the power of prayer. God bless yoy all.