Support Registry Update

Harper’s Wish & What’s Next

Harper's Recovery photo
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Harper's Recovery
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We had the most wonderful time at Walt Disney World for Harper’s wish through Make-A-Wish Foundation. We stayed at Give Kids The World Village alongside other wish families, and it was truly incredible. The volunteers were so kind, and every detail was thoughtfully planned to make the experience special. 

 
We spent three days at Disney, two at Universal Orlando Resort, and a half day at SeaWorld Orlando. 

 
Considering she had just come off a fever, Harper did amazingly well. She loved meeting the characters at each park, enjoyed so many rides (including several roller coasters!), and ate plenty of ice cream. It was pure joy watching her soak it all in. 

 
We returned home Saturday morning with full hearts and completely exhausted in the best way. 

 
Today we went to clinic to review Harper’s MRI and discuss next steps. The good news: her tumors are responding to chemo, and everything has shrunk some. The harder news: her liver is still too enlarged to safely move forward with surgery or radiation without risking damage to her remaining kidney. 

 
Another challenge is that one of the genes in her tumor can become resistant to chemotherapy, so we need to adjust her treatment plan. Starting tomorrow, she will begin five days of outpatient chemo — two drugs she has had before, though not since around July — along with an oral medication that’s typically used in adults. There is a small pediatric study showing some promise when this oral medication is paired with the IV chemo. 

 
We are grateful for the positive news and thankful for a break from inpatient chemo. We’ll rescan in about nine weeks and are hopeful that radiation might be a possibility then. 

 
Thank you for continuing to pray, support, and walk this road with us. 





Lauren Seaman
3 months ago

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Comments

Janice Barrett

We love you Harper, Lauren, and Ryan. We know you will handle this next step with love and grace.
  • 3 months ago

Wendi Gaskill

I’m so thrilled with a joyful trip to Disney and the promise of progress! Continue to pray for healing!
  • 3 months ago

Susan Croyle

So glad to hear Harper enjoyed Disney! Continuing prayers for her progress and healing.❤️🙏
  • 3 months ago

Ashley Schuller

What a great trip! Glad you got to make some precious memories. Prayers for continued success with the new regimen. Thinking of you all! Sending love!
  • 3 months ago

Ashley Schuller

What a great trip! Glad you got to make some precious memories. Prayers for continued success with the new regimen. Thinking of you all! Sending love!
  • 3 months ago

Cindy Coles Rappenglueck

Glad you all got to have a memorable vacation, precious moments. Continued Prayers for full healing and strength for the journeys. ❤️🙏🙏🙏🙏🙏🙏🙏🙏❤️
  • 3 months ago

Julie Giglio Manganiello

It's wonderful that Harper got to experience Disney World!! Make a Wish is a wonderful foundation and I always give generously. Harper is always in my prayers as well as her family. I also pray for the medical staff and scientists who continue to seek out new drugs and treatment options. Being a two time cancer survivor and having undergone numerous surgeries as well as chemo and radiation, I know what all that means. All my prayers and support are with you. I grew up with Scott which gives Harper a special place in my heart.
  • 3 months ago

Cheryn Fogarty

Thank you for sharing your photos and highlights about your wonderful trip and hang tight to these memories as you continue forward. Many prayers.
  • 3 months ago
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