🌟 Long post warning! Update! 🌟 

We hope you all had a wonderful Thanksgiving! 🦃 
Now time to get in the Christmas spirit! 🎄 

[Photo from Monday enjoying some fun festivities in our town!]

Here is a little update. October 29th we saw a Genetic specialist at Mayo, Rochester that we were referred to from Boston (since going back and forth to Boston isn't ideal unless medically needed) they helped us find someone closer to home that could visit with us regarding the genetic diagnosis on Elise's AVF's. We learned a lot but so many unknowns. Her diagnosis is very rare and in fact when you Google the exact name of it, it says, "There isn't literature on it indicating it's rare." With that, some things they know and others we learn along the way. Not necessarily what we like but it's part of the journey. This malformation Elise had on her brain have been known to develop on the brain, spine, soft tissue of the neck and heart in patient's with this diagnoses. It hasn't been known that it can develop in the organs. Elise has had Brain and Spine MRI's so we have covered checking those areas but we haven't had any heart testing. They recommended an Echocardiogram. Elise had an Echocardiogram done today and we saw a Pediatric Cardiologist. We are thankful to report her heart is perfect and normal! No findings! ❤️ Thank you, God! 

A reoccurring question has been..Can these develop later in life or if only born with them that is all you will ever see? The answer is they don't really know BUT they don't believe they would develop later if the patient wasn't born with them. However, a scan could look clear because they are so small but as the person grows they too grow and become noticeable on scans. We hope and pray that the clear scans stay clear! 🙏  It appears that now since surgery in February, she is clear of any more AVF's with all her scans so we are praying that's how things stay! 

Thank you for all your continued prayers! We appreciate them so much!