Support Registry Update

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Deana's Cancer Journey
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I saw the neurologist oncologist and the vascular dr today.  The neurologist is happy with the shrinkage. He wants to do an MRI in 6 weeks to see about the spinal fluid. He is trying this before having me do another spinal tap. 

The vascular dr was so nice. He asked me how am I doing, I told him good. He says none of this is good but despite it he wants to make sure when he put the port in that I don't feel anything. Trust me I need that more than he knows! He was very sympathetic. Everything he said to me is spot on but I didn't want to continue that part of the conversation or I was going to cry.  He is going to put the port on the left side. I might have a bit more edema issues but fingers crossed I will be just fine.  The other port site is looking really good but we don't want to wait until that is totally healed.  I will have the port put in Monday and I can do treatment on the 6th. I'm praying I am able to do my IV vitamin C again. They really make a huge difference in many different things, one being it helps the Enhertu's efficacy and my body's strength is better. I have a cold still. My eyes are watering and I am either stuffed up or my nose is running. I swear this feels more like allergies. 

Saturday I had dinner with 2 former students' family. I got to see 2 of my babies!!! For years my students have asked how old I am and I would never tell them. I slipped up talking to their uncle and of course when I said my age one of the students heard. LOL I knew she would go to school and tell the others she finally knows my age.  I really enjoyed talking with the moms. I really needed some adult time. If either of you are reading this. Thank you again for dinner and your company!!  Mike asked me to make Cajun pasta for him soon. That is what we had for dinner and I will be happy to make it for him. 

I realized I cleaned up the kitchen last night which included sweeping and mopping. My body doesn't hurt at all, like no soreness either!  That's another thing to add to what I am grateful for. I didn't sleep well last night. I was a smidge concerned what the neurologist would say. I have held very firm on NO PROGNOSIS talk. That will continue to be between God and I. 

I saw a picture of a little girl playing in the rain with her dog. I love it. It reminds me of the fun I used to have playing in the rain. If you see her face it is so innocent and she's enjoying herself. So I saved the picture. 

It's a beautiful day and I want to go sit in the sun. It's been a good day! My family and friends in the cold zones I hope you are staying warm and safe. Love to all!


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Comments

Wendy Labus

Sending continued prayers and hugs please send heat this way it's way to cold here
  • 3 days ago

Mary Musich-Cothron

Im so very happy to hear about your lovely evening πŸ’• I agree with you, the adult interaction is really refreshing. I think of you all the time and I pray for you daily πŸ™
  • 3 days ago

Margie Gonzalez

God is Good DeannaπŸ₯³πŸ™πŸΌπŸ’•
All the time!!!
It makes me so happy to know you are doing amazing! Keep praying as I will never stop πŸ™πŸΌπŸ’•
  • 3 days ago