Yesterday was Day 0, the day Cody received his stem cells. That moment marked the beginning of his body rebuilding a brand new, healthy blood and immune system. We are now officially Day +1, one day into this next phase.

The days ahead, particularly Days +3 through +14, are typically the most intense. During this time, his immune system will be at its lowest while the new stem cells settle in and begin to grow. This is when side effects from chemotherapy and transplant often appear, so the team is watching him closely and preparing ahead for anything that may come.

Last night, after three difficult attempts at placing an NG tube on Sunday, the team made the decision to start TPN (IV nutrition) instead. This ensures Cody’s body is getting the calories, hydration, and nutrients it needs, especially as his appetite has decreased. The chemotherapy drugs Thiotepa and Cytoxan are known to cause nausea, taste changes, mouth and throat soreness, and overall fatigue...all of which can make eating very hard. While he is still trying to take small bites when he can, TPN is giving his body steady support so he doesn’t fall behind nutritionally.

In the coming days, he may experience additional side effects such as:
• Increased fatigue
• Mouth or throat sores
• Nausea or vomiting
• Diarrhea
• Fevers as his immune system drops
• Body aches or discomfort

Not every child experiences every symptom, but we are prepared for whatever his body needs, and his care team is truly on top of every detail.

Today Cody will receive a blood transfusion as his hemoglobin has dropped, which is expected during this phase. Platelets will likely follow soon as his counts continue to fall before new cells begin to grow.

And yet, despite everything, Cody is in great spirits. We cannot tell you how many nurses, doctors, and staff have commented on how remarkably well he is doing so far. We pray daily that he stays comfortable, peaceful, and able to rest as his body does this incredible work.

He continues to have OT and PT come by to help him move his body and prevent weakness. He gets daily baths to keep his skin clean and protected. Every small detail matters in this season.

To everyone who has provided meals and snacks, thank you more than words can say. I usually get home around 7–8pm, and walking in to food that has been made with love lifts such a weight from our shoulders. It allows Eric and I to divide and conquer...him staying nights, me covering days...while keeping life steady for Cody and the boys.

Most of all, keep praying. We feel those prayers. We believe in their power. And we are so deeply grateful for each of you walking this road with us.

With love and gratitude,
Stacia & Eric 🤍