Ummm are we almost “normal”?
In support of
Camilla Can
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Camilla Can
Girl. GIRL! I have the coolest update for you buuuuut I need you to have an “inchstone” mindset otherwise you aren’t going to see the win.
For the past whiiiiiiile (I’m talking year+), Camilla has been eating 5 meals a day and then had fluids running pretty much all night.
This is been… tricky. Day time is essentially a newborn eating pattern (which you and I both know comes with very real problems when you try to do anything outside of the house). Plus, all of the nightly fluids means she’s going to the bathroom at night. Unfortunate. For everyone. Aaaaaaand this schedule had Carson and I doing her nightly fluids at midnight which puts us going to be every night at 12:30. Exhausting.
We’ve been working to give Camilla’s gut the support it needs to increase her daily volume and WE FINALLY MADE IT!!!
Nutrition and I crunched the numbers and Camilla can officially eat FOUR meals a day aaaaand her nightly fluid intake is lower so her fluids can be started at NINE PM and be done by 12:30!!!!
This is suuuuch a huge win for us!!!
God willing, this next round of DMI will do lots for her including strengthen and improve her overall tone just like last time!!
Something lots of people don’t realize is that when tone of voluntary muscles (like the neck and trunk) improve, tone of involuntary muscles (like the small and large intestines) also improve!!
Thank you so much to everyone who donated to help cover this next round of DMI therapy!! Each and every dollar adds up to make a huge difference in Camilla’s independence and quality of life! We couldn’t do this without you and your generosity!
For the past whiiiiiiile (I’m talking year+), Camilla has been eating 5 meals a day and then had fluids running pretty much all night.
This is been… tricky. Day time is essentially a newborn eating pattern (which you and I both know comes with very real problems when you try to do anything outside of the house). Plus, all of the nightly fluids means she’s going to the bathroom at night. Unfortunate. For everyone. Aaaaaaand this schedule had Carson and I doing her nightly fluids at midnight which puts us going to be every night at 12:30. Exhausting.
We’ve been working to give Camilla’s gut the support it needs to increase her daily volume and WE FINALLY MADE IT!!!
Nutrition and I crunched the numbers and Camilla can officially eat FOUR meals a day aaaaand her nightly fluid intake is lower so her fluids can be started at NINE PM and be done by 12:30!!!!
This is suuuuch a huge win for us!!!
God willing, this next round of DMI will do lots for her including strengthen and improve her overall tone just like last time!!
Something lots of people don’t realize is that when tone of voluntary muscles (like the neck and trunk) improve, tone of involuntary muscles (like the small and large intestines) also improve!!
Thank you so much to everyone who donated to help cover this next round of DMI therapy!! Each and every dollar adds up to make a huge difference in Camilla’s independence and quality of life! We couldn’t do this without you and your generosity!
Leah Crum
about 1 month ago
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