Good afternoon all!! I have not updated on here in awhile, lots of things have gone on. During spring break Cami got RSV and ended up in the hospital for a few days needing some oxygen support. Cami was scheduled for surgery on 04/07 to replace the screws in her hips and to get ear tubes with possible adenoid removal. This was cancelled because she had RSV and anaesthesia wants her in optimal health for 6 weeks before they will evaluate her to approve for surgery. There is no new surgery date for this yet because on 04/07 I had her back at her PCP and she had rhinovirus which added more wait time for her to be in optimal health. This will likely be rescheduled to sometime in the summer. We have not reached our goal yet to cover the costs for Neurosolutions and even if we had we would likely have to reschedule because she wouldn't be healed up enough from the hip portion of the surgery. We have an EGD/Colonoscopy scheduled for 05/28 this is not being done at TCH and we have not met with this hospitals team of anesthesiologists for clearance. Cami has had a bad reaction to anesthesia twice in the past so any time she's put under we request that the hospital keeps her overnight for observation. 

We also have a shirt fundraiser going on as well and I will be deducting what we have received from that off of the total goal on here just as I have done with all cash donations we have received in hand to keep transparency.

As always thank you so much!! We can never thank yall enough for all of the support for Cami.