I know I’ve been quiet for a while. Much of that silence has been due to the ongoing challenge of not having consistent weekday nursing coverage. Thank you for continuing to love and pray for our sweet boy even in the silence 🤍 

 

We are so grateful to finally have our weekday nursing spot filled! We’re excited to welcome her into our home on Monday. Stability like this is a huge answered prayer for our family. 

Thank you all for sharing our need for nursing. Your share helped lead us to our new nurse and we are so grateful! 🤍 

We’re seeing continued progress! His doctor increased his dosage, and we’re noticing better head control, stronger trunk support, more controlled movement, and even some weight-bearing in both arms and legs. He’s also getting off the ventilator for 1–1.5 hours a day. Some moments that have melted our hearts most are his love for mango and bubbles, his smiles, exploring his hands and feet, requesting “Itsy Bitsy Spider” on his device, and even requesting to be suctioned. We  haven’t heard any more words from
him or much of his little voice but these are HUGE improvements. It’s such a blessing to watch him make strides no matter how big or small.

 

Thank you for walking this journey with us and continuing to pray for steady progress for our boy.