Benny had an amazing week. 💙

We’ve been continuing to push oral feeding and introducing drinks with his new teddy bear cup — and it’s been a game changer! 🧸💧 For other medical mamas: if your little one struggles to suck, this cup can be gently assisted to help them get the drink in their mouth. It’s been a more age-appropriate alternative to a bottle for Benny, and perfect now that summer is here and he can enjoy cool, refreshing sips.

He really enjoys flavorful things like pudding and applesauce. I even tried a pickle for a flavor experience… that one was a solid no 😂

Slow and steady truly wins the race. Right now, he takes 3–4 bites in a sitting, but we know consistency will build strength. 💪

We’re now a little over two weeks out from his bottom surgery, and although healing has been slow, it’s moving in the right direction. 🙏

This week, we’ll start back up with hyperbaric oxygen treatments in Wichita — and we have big news:

We’re praying over the cost, the space, and trusting that this is our best next step. Benny won’t just benefit from this for 6 months… it’s something that can help him for the next 20 years. While my business is currently tucked in our bedroom (so space is tight), I know God will make room. He always does. 🤍

I also know I can’t keep making the trip to Wichita twice a week and missing so much from my girls. This is the move for our whole family.

Many have asked about our case. Sentencing is scheduled for June 17, and from there, the civil case can begin.

Just 10 days later, on June 27, we’ll mark one year since Benny’s incident. 💔

In July, we’ll be heading to Carmel, Indiana for two weeks so Benny can complete another DMI intensive! We’re so hopeful and excited for the progress this will bring and the next big steps in his therapy journey. Watching him grow stronger through these sessions has been such a gift, and we can’t wait to see what this next chapter holds. 

Lately, I’ve felt a little more grounded. I haven’t cried in weeks — and that feels like a milestone in itself.

Over 300 days ago, we faced the darkest moments of our lives. Today, I can sit down and not fall asleep from exhaustion (well… maybe 😅), and I feel more confident navigating Benny’s needs. We’re starting to do more, live more, and feel less fear stepping out into the world.

Truthfully, we’ve now lived more abnormal than we ever did before this — but somehow, we’re learning how to make peace with it.

We still face so many hurdles, but our miracle boy keeps fighting forward, and we are soblessed to wake up every day with him here to love.

Today we went to lunch with family, and Charley made three wishes in the wishing well.

Not for a dream bike. Not to be a princess.

She wished:

💫 For Benny to smile again

💫 For Benny to play with her

💫 And for Benny to talk to her again.

The word “again” stung.

But it also reminded me of how deeply our family remembers, hopes, and BEElieves in what’s still possible.

Thank you all for continuing to follow our journey, for covering our family in prayer, and for walking this road with us. We truly don’t know where we’d be without this community. 💛