Rocky roads

Time passes fast. We had prepped for Zoe’s first intensive therapy for months. As September arrived, I diligently packed enough for 3 full weeks in Charlotte with our beautiful Zoe Sue while simultaneously managing vomiting spells, teething, GI issues and an uptick in seizure activity. The big day came and we completed one of three weeks of intensive therapy and Zoe was kicking butt! 
Unfortunately, the seizure activity increased and was unresponsive to an increase in her medicine we already had to treat focal epilepsy, so we brought her to the hospital here in Charlotte where her team already had all the information needed. An admittance on Monday, MRI, X-rays and an EEG to monitor her brain showed Zoe was having a severe and rare form of epilepsy called infantile spasms. Thankfully, it’s treatable. It is considered an emergency as it can do more harm to her brain and we were able to immediately start her on steroids to control the seizures. 
This also means that we had to pause and postpone Zoe’s therapy. We are hoping to work with NAPA to prorate a new 3 week intensive in the near future, but felt it was best to pull her from the current session to allow her brain and body the space and time to recover. This felt like a major gut punch, however, we are truly hoping it just means she will have a huge blessing and developmental leap coming soon. 
Please keep our family in your prayers and if you’re able to donate, every little bit helps us to get her re-enrolled. We are still hoping for head and trunk control and the ability for Zoe to handle basic functions. Thank you for tuning in!