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Zoe Sue's Journey
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Zoe Sue's Journey
Hello all!
Miss Zoe Sue has had a pretty good health streak lately. After our previous Neurosurgery appointment, we have adjusted Zoe's shunt to control her Hydrocephalus back to .5, meaning that it is at a slower rate than before. We are headed back to Charlotte in a few days to get a rapid MRI and see how she's doing. *Side Note* Can you believe Zoe has aged out of Cranial ultrasounds because she's almost ONE YEAR OLD!? Her ventricles showed large and her Hydrocephalus is still very present. Her programmable shunt will be a lifelong device that she will grow with. So long as we don't have infection to the shunt or any malfunction, she is expected to be able to have the shunt permanently.
She has seen the eye doctor and had clearance on her vision, other than potential farsightedness, which won't be addressed until later if it becomes a problem. This is surprising for someone who has severe HIE and Hydrocephalus.
She has still been fighting recurring UTI's, so, we will be going to see Urology to make sure her kidneys are doing ok.
Other news would be that Zoe started feeding therapy here in Asheville, however, within the next week or so, Zoe will need surgery to correct a tongue & upper lip tie. These are both common for children with DS and should be a relatively "easy" fix. She is also SO close to a tooth or 2 popping through those gums.
Zoe holds her head up for short bursts still and has been learning how to bring toys to her midline and mouth. We keep a hearing aid in her left ear due to partial hearing loss and are working on hearing and development.
For now, we ask for prayers and your continued support as we navigate more big upcoming appointments and a birthday party to plan! Thank you, as always, for taking the time to think of our family!
Miss Zoe Sue has had a pretty good health streak lately. After our previous Neurosurgery appointment, we have adjusted Zoe's shunt to control her Hydrocephalus back to .5, meaning that it is at a slower rate than before. We are headed back to Charlotte in a few days to get a rapid MRI and see how she's doing. *Side Note* Can you believe Zoe has aged out of Cranial ultrasounds because she's almost ONE YEAR OLD!? Her ventricles showed large and her Hydrocephalus is still very present. Her programmable shunt will be a lifelong device that she will grow with. So long as we don't have infection to the shunt or any malfunction, she is expected to be able to have the shunt permanently.
She has seen the eye doctor and had clearance on her vision, other than potential farsightedness, which won't be addressed until later if it becomes a problem. This is surprising for someone who has severe HIE and Hydrocephalus.
She has still been fighting recurring UTI's, so, we will be going to see Urology to make sure her kidneys are doing ok.
Other news would be that Zoe started feeding therapy here in Asheville, however, within the next week or so, Zoe will need surgery to correct a tongue & upper lip tie. These are both common for children with DS and should be a relatively "easy" fix. She is also SO close to a tooth or 2 popping through those gums.
Zoe holds her head up for short bursts still and has been learning how to bring toys to her midline and mouth. We keep a hearing aid in her left ear due to partial hearing loss and are working on hearing and development.
For now, we ask for prayers and your continued support as we navigate more big upcoming appointments and a birthday party to plan! Thank you, as always, for taking the time to think of our family!
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