One Day At A Time
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Willow Price
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Willow Price
This week Willow had a neurology appointment to check on her ETV (brain surgery) and her head growth. The boys went with me to this appointment, which is always a bit intimidating 😆 We are quite the sight wheeling into the Children’s hospital in our packed-out stroller.
Last time I took the boys with me to a neurology appointment, the doctor told me Willow needed brain surgery. So Tuesday, there were some emotions brewing on the way there.
Willow’s neurosurgeon is one of the kindest and most attentive doctors I’ve ever met. He is intentional with his questions and never leaves the room until all of your questions have been addressed. We’re so thankful for him and the neuro team at Cooks.
Willow’s head size continues to trend on the large side, but her fluid and pressure levels are stable. I did laughingly tell the doctor that all three of my boys had heads in the 90th percentile…so he agreed that genetics could definitely be at play. It’s just something we will continue to monitor over the coming months and years.
Does Willow have a big ole head? Yeah, a bit. But she is still the prettiest and sweetest thing you could imagine. Her neurosurgeon always comments on how alert and engaged she is, and I always think to myself, “If he could only see her in action at home!”
Willow is growing and thriving. She is army crawling and getting into all the cabinets. She says “hi” to everyone she sees. Lately she’s been doing hilarious baby tricks. And she still thinks her brothers are the funniest things on the planet.
This week I am grateful for the Children’s hospital being so close by, that my boys were well behaved at the appointment, and that Willow is stable.
I’m currently reading “Trusting God” by Jerry Bridges (highly recommend!).
This excerpt stopped me in my tracks:
I’m currently reading “Trusting God” by Jerry Bridges (highly recommend!).
This excerpt stopped me in my tracks:
“I think of a physician whose son was born with an incurable birth defect, leaving him crippled for life. I asked the father how he felt when he, someone who had dedicated his life to treating the illnesses of other people, was confronted with an incurable condition in his own son. He told me his biggest struggle was the tendency to capsule the next twenty years of his son’s life into that initial moment when he learned of his son’s condition. Viewed that way, the adversity felt overwhelming. God does not give twenty years of grace today. Rather, He gives it day by day. As the song says: ‘Day by day, and with each passing moment, Strength I find to meet my trials here; Trusting in my Father’s wise bestowment, I’ve no cause for worry or for fear.’”
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Jessica Dumoulin