Hey everyone thank you for all the support and sorry I’ve slowed down on updates lately. We just keep going back and forth with her bowl movements. She’ll be feeling good and going to much and then start crying because she’s not going at all. Just no balance I’ve been so busy lately with trying to keep her from crying and not getting enough sleep and calling doctors leaving messages with them in her chart. I can’t believe it’s been two days and I still haven’t recieved a phone call back from the Dietrictian or the G.I. Doctor. Thankfully her primary doctors been available and the nurses on that team have been helping and trying to guide us on what to do. 
Keep us in your prayers that we can get some answers and she can get some rest tonight.
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Picture of sleeping girl getting her respiratory treatment. She’s so sweet.