We got the call, y’all! 

 

We’re heading out 4/26 for Vayda’s therapy admission — a call I’ve been praying for, but when it finally came, it hit me like a wave. Excitement. Panic. Fear. Hope. I know many medical parents know this feeling all too well. 

 

I’m beyond hopeful for the next chapter Vayda is about to step into, but it’s wrapped in so much uncertainty. It’s hard to put into words what it feels like to face our donors and supporters knowing there’s a possibility she may not hit the milestones we’re all so desperate for her to reach. It’s humbling. It’s scary. It feels like we’re walking a tightrope between hope and heartbreak. 

 

I don’t know if I’m ready for what’s ahead — but I do know I’ve been preparing my heart. Through every sleepless night, every quiet moment of mindfulness, I’ve practiced surrender. I’m learning to accept whatever this next phase brings — the good and the hard. 

 

To everyone who has shared, watched, donated, or simply sent love our way… thank you. Truly. We made a video to give you a glimpse into our daily life. It’s long. It’s raw. There’s a trigger warning for choking — a real and terrifying part of our reality. But it’s also full of love, resilience, and the unfiltered truth of what caring for Vayda looks like. 

 

It’s not easy to share these moments, but it’s important. Because this is our journey — and it matters. 

 

Watch here: 

https://youtu.be/nBhXu0YM_YA

I’m so grateful for you all!