The word you never want to hear post transplant… rejection.
In support of
Oakley Werley’s Miracle Heart
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Oakley Werley’s Miracle Heart
This hit us like a ton of bricks tonight… one of those moment again in our journey where it just completely takes your breath away. 💔
I couldn’t wait for the doctors to walk out of the room so I could just silently break down and cry. I never want Oakley to see or hear me cry because I want to be strong for her but it’s impossible to be strong all the time. There’s nothing I want more than a beautiful and healthy life for Oakley… the emotions and thoughts just started flooding my mind. She’s been through so so much. She just wants to go home and be a normal kid…
The doctors did give us some peace of mind and told us 2R cellular rejection is quite common in the first year of transplant. The key is getting it treated as soon as possible and that the steroid treatment is successful. In two weeks Oakley will have follow up biopsy which will tell us if treatment worked.
Transplant is not a fix or a cure. It’s the most precious gift and a second chance at life however, it comes with a whole new set of challenges & obstacles. It’s one day at a time.
Please Lord, let these steroids fully treat any and all rejection in her body. Allow her new heart to be accepted as her own. We pray for this follow up biopsy in two weeks to show zero signs of rejection. Lord we trust You and we know you love Oakley more than we could ever imagine. Give us strength and joy even in the hurting. Protect Oakley and keep her strong 🙏🏽
I kept asking Oakley how she felt today, took her temps, blood pressure, asked her to eat/drink etc. (doesn’t help I am a nurse too so I absolutely drive her crazy!) and Oakley said, “Mom, stop worrying”. 😭 This is my reminder to give it to God. I am not in control. He is. My job is to love Oakley and teach her about Gods love. During our prayer tonight she said, “Did you know that in heaven there is infinite happiness?” Again, I held back the tears and saved them for after she fell asleep but wow. Oakley is a true gift from God.
She got an MRI tonight of her brain to further look into these frequent headaches she’s been having and neuro will discuss results with us tomorrow. Please please pray for these steroids to do exactly what they’re intended to do which is to stop the body from rejecting her new heart. Please pray for her headaches and her overall strength and joy. My biggest prayer is a long and beautiful life 🙏🏽❤️ God, we know you’re the ultimate healer and you’re the one who performs miracles everyday. Let there be more miracles 🙏🏽 All in your sons name, Amen.
I couldn’t wait for the doctors to walk out of the room so I could just silently break down and cry. I never want Oakley to see or hear me cry because I want to be strong for her but it’s impossible to be strong all the time. There’s nothing I want more than a beautiful and healthy life for Oakley… the emotions and thoughts just started flooding my mind. She’s been through so so much. She just wants to go home and be a normal kid…
The doctors did give us some peace of mind and told us 2R cellular rejection is quite common in the first year of transplant. The key is getting it treated as soon as possible and that the steroid treatment is successful. In two weeks Oakley will have follow up biopsy which will tell us if treatment worked.
Transplant is not a fix or a cure. It’s the most precious gift and a second chance at life however, it comes with a whole new set of challenges & obstacles. It’s one day at a time.
Please Lord, let these steroids fully treat any and all rejection in her body. Allow her new heart to be accepted as her own. We pray for this follow up biopsy in two weeks to show zero signs of rejection. Lord we trust You and we know you love Oakley more than we could ever imagine. Give us strength and joy even in the hurting. Protect Oakley and keep her strong 🙏🏽
I kept asking Oakley how she felt today, took her temps, blood pressure, asked her to eat/drink etc. (doesn’t help I am a nurse too so I absolutely drive her crazy!) and Oakley said, “Mom, stop worrying”. 😭 This is my reminder to give it to God. I am not in control. He is. My job is to love Oakley and teach her about Gods love. During our prayer tonight she said, “Did you know that in heaven there is infinite happiness?” Again, I held back the tears and saved them for after she fell asleep but wow. Oakley is a true gift from God.
She got an MRI tonight of her brain to further look into these frequent headaches she’s been having and neuro will discuss results with us tomorrow. Please please pray for these steroids to do exactly what they’re intended to do which is to stop the body from rejecting her new heart. Please pray for her headaches and her overall strength and joy. My biggest prayer is a long and beautiful life 🙏🏽❤️ God, we know you’re the ultimate healer and you’re the one who performs miracles everyday. Let there be more miracles 🙏🏽 All in your sons name, Amen.
Kennidi Werley
9 months ago
Comments
Kathie Fenwick
Sackss
Ginger Tucker
Jennifer Haller
Stacey Ashabranner
Ruth Berman
Kristina Rodriguez
Tawny Blum
Suzie Mendoza
Another survivor
Another survivor
Suzanne Rahinsky
Denise DuRoss
Kimberley Milliman
Bethany Girardi
Those are word no mum wants to hear. But Oakley is strong, you are strong and our God is stronger than it all. He’s got you! Rest in him, praying for you! 🩷🩷🩷
Liz Skidmore
Melinda Aumann
Npoynter23
We thank you for your mercies
Lily Chow
Val Guerrero
Annemarie Wiater
Leigh McMahan
ANA Acosta
Heidi Bol
Teresa Schmidt
We were at MD Anderson yesterday for my husband’s checkup and upon seeing the Texas Children’s Hospital, I was praying that Oakley was up there doing well.
Continued prayers for you all! We know God has Oakley in his hands and she will be healed.
Marcia Boerman
Tricia Kubasko
Glenda Lopez
Linda Hilker
🙏💗
Linda Hilker
🙏💗
Carolyn LePage
Rachel Kelley
Kimberly Nguyen
God is Great and will take care of Oakley
Shannon Salstein
Christine Piggott
Geraldene Wasylowich
Cheryl TerHaar
Hoping for her to go home soon.
Kim Malarae
Coco Klamt
Lori Maatman
Lynn Kamp
Andrea Frost
kelly Hanlon
Kim K
Grace.crocker
A Prayer for Healing and Strength-
Heavenly Father,
We lift up this precious little girl to You, knowing that You are the giver of life and the healer of all wounds. You have blessed her with a new heart, and we pray now for Your gentle, loving hands to hold her close as she faces these complications.
Lord, bring comfort where there is pain, peace where there is fear, and strength where there is weakness. Guide her doctors and nurses with wisdom, that every decision made is in her best interest. Let her body grow stronger each day, and let her heart beat with the joy and love You have placed within her.
Surround her with Your angels, Lord, and wrap her family in Your endless grace. Remind them that they do not walk this journey alone, for You are with them, holding their hands and wiping their tears.
We trust in Your perfect plan and ask for complete healing in Your time. Let this little girl’s life be a shining testimony of Your love and power.
In Jesus’ name, we pray,
Amen.
Catherine Telgenhof
Geri Keller
Saying prayers for you both
JOLEEN VERBONITZ
Jolanta Rynsburger