The word you never want to hear post transplant… rejection.
In support of
Oakley Werley’s Miracle Heart
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Oakley Werley’s Miracle Heart
This hit us like a ton of bricks tonight… one of those moment again in our journey where it just completely takes your breath away. 💔
I couldn’t wait for the doctors to walk out of the room so I could just silently break down and cry. I never want Oakley to see or hear me cry because I want to be strong for her but it’s impossible to be strong all the time. There’s nothing I want more than a beautiful and healthy life for Oakley… the emotions and thoughts just started flooding my mind. She’s been through so so much. She just wants to go home and be a normal kid…
The doctors did give us some peace of mind and told us 2R cellular rejection is quite common in the first year of transplant. The key is getting it treated as soon as possible and that the steroid treatment is successful. In two weeks Oakley will have follow up biopsy which will tell us if treatment worked.
Transplant is not a fix or a cure. It’s the most precious gift and a second chance at life however, it comes with a whole new set of challenges & obstacles. It’s one day at a time.
Please Lord, let these steroids fully treat any and all rejection in her body. Allow her new heart to be accepted as her own. We pray for this follow up biopsy in two weeks to show zero signs of rejection. Lord we trust You and we know you love Oakley more than we could ever imagine. Give us strength and joy even in the hurting. Protect Oakley and keep her strong 🙏🏽
I kept asking Oakley how she felt today, took her temps, blood pressure, asked her to eat/drink etc. (doesn’t help I am a nurse too so I absolutely drive her crazy!) and Oakley said, “Mom, stop worrying”. 😭 This is my reminder to give it to God. I am not in control. He is. My job is to love Oakley and teach her about Gods love. During our prayer tonight she said, “Did you know that in heaven there is infinite happiness?” Again, I held back the tears and saved them for after she fell asleep but wow. Oakley is a true gift from God.
She got an MRI tonight of her brain to further look into these frequent headaches she’s been having and neuro will discuss results with us tomorrow. Please please pray for these steroids to do exactly what they’re intended to do which is to stop the body from rejecting her new heart. Please pray for her headaches and her overall strength and joy. My biggest prayer is a long and beautiful life 🙏🏽❤️ God, we know you’re the ultimate healer and you’re the one who performs miracles everyday. Let there be more miracles 🙏🏽 All in your sons name, Amen.
I couldn’t wait for the doctors to walk out of the room so I could just silently break down and cry. I never want Oakley to see or hear me cry because I want to be strong for her but it’s impossible to be strong all the time. There’s nothing I want more than a beautiful and healthy life for Oakley… the emotions and thoughts just started flooding my mind. She’s been through so so much. She just wants to go home and be a normal kid…
The doctors did give us some peace of mind and told us 2R cellular rejection is quite common in the first year of transplant. The key is getting it treated as soon as possible and that the steroid treatment is successful. In two weeks Oakley will have follow up biopsy which will tell us if treatment worked.
Transplant is not a fix or a cure. It’s the most precious gift and a second chance at life however, it comes with a whole new set of challenges & obstacles. It’s one day at a time.
Please Lord, let these steroids fully treat any and all rejection in her body. Allow her new heart to be accepted as her own. We pray for this follow up biopsy in two weeks to show zero signs of rejection. Lord we trust You and we know you love Oakley more than we could ever imagine. Give us strength and joy even in the hurting. Protect Oakley and keep her strong 🙏🏽
I kept asking Oakley how she felt today, took her temps, blood pressure, asked her to eat/drink etc. (doesn’t help I am a nurse too so I absolutely drive her crazy!) and Oakley said, “Mom, stop worrying”. 😭 This is my reminder to give it to God. I am not in control. He is. My job is to love Oakley and teach her about Gods love. During our prayer tonight she said, “Did you know that in heaven there is infinite happiness?” Again, I held back the tears and saved them for after she fell asleep but wow. Oakley is a true gift from God.
She got an MRI tonight of her brain to further look into these frequent headaches she’s been having and neuro will discuss results with us tomorrow. Please please pray for these steroids to do exactly what they’re intended to do which is to stop the body from rejecting her new heart. Please pray for her headaches and her overall strength and joy. My biggest prayer is a long and beautiful life 🙏🏽❤️ God, we know you’re the ultimate healer and you’re the one who performs miracles everyday. Let there be more miracles 🙏🏽 All in your sons name, Amen.
Kennidi Werley
about 1 year ago
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