^{Support Registry Update}

“It’s time to transfer”

In support of
Oakley Werley’s Miracle Heart

What a week… so much heart ache and pain. Losing our sweet baby girl Leighton has been more painful than I ever could have imagined. The pain is unexplainable. As my life feels like it is crashing down, we have to keep going.

The same day our baby girl gained her angel wings Oakleys surgeon Dr. Fraser hurt his back while operating and is now taking a minimum of 2 weeks off to rest. He was the only transplant surgeon Dell had and now the entire transplant program is shut down with him out. This was more heart breaking news as Oakley has already been waiting nearly 9 months for her miracle and still has not gotten any offers.

This has made us come to the decision that we need to transfer Oakley to a different hospital to give her the best chance possible at getting her miracle heart. We have decided on Texas Children’s in Houston which is the #1 cardiac transplant center in the US. She has been accepted medically and now we wait on insurance. We are not sure what this will look like financially to get her there but pray God makes a way. We need her miracle and we need it as soon as possible. Please Lord, we need You.

With a broken heart I will continue to fight and advocate for Oakley. The only explanation to this strength is from God and I will forever give him all the glory.

Your prayers mean the world to us. Please pray that Oakley remains stable and that she can get to Houston as so soon as possible. Being here without a surgeon is terrifying. I just want the peace in knowing my baby is safe.

Thank you for all your love.

-Kennidi

Kennidi Werley
almost 2 years ago

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Comments

Melody Timmerman almost 2 years ago

So thankful for this specific prayer request on all the levels. On it now sweet mama!

Scott.jill55 almost 2 years ago

I’m so so sorry for your loss. I will be praying for Oakley. Please lord you have been through so much. I will keep on praying

Emily Troyer almost 2 years ago

My heart aches for you and I want you to know I am praying for you. I have been following you on Instagram for quite some time now and every day when I see you have a story posted I'm just hoping and praying that the post is that Oakley found her miracle heart! Just remember Jesus loves you, and he is with every step of the way

Mary Onstott almost 2 years ago

I will continue to pray for Oakley. You guys have been through the wringer. She will get that heart. God is wonderful. Love you guys

Laura S almost 2 years ago

Prayers from Northern Ireland. Your baby has the best deal of all. Safe in the Arms of Jesus forever. It’s just tough for those left behind.

Triciahassell almost 2 years ago

I am so deeply sorry for your loss and now for the hard news of Oakley’s transfer. We have not stopped praying for your family and will continue to do so. We are believing and declaring your miracle. We pray that this transfer is happening so that God will have Oakley exactly where she needs to be when she gets her heart. We are praying for your comfort knowing that Leighton is now resting peacefully with God Almighty. You are a warrior, Kennidi. You are strong. You are courageous. We love you and your family and will continue to pray and declare the good news that God has coming for your family!

Kelli Weaver almost 2 years ago

Prayers for your sweet Oakley. God will find a way for her to get to Texas. He always does. Y’all are so strong. God is a Waymaker. I’m in awe of your faith, courage and strength. Condolences on your precious Leighton. Continued prayers for your whole family

Jlemcke1211 almost 2 years ago

If you need anything from us here in Houston, a hug, a place to stay, a home cooked meal, hangout and play with nash! We are here for you!!

Sommer Leonard almost 2 years ago

We live in Houston. I am a mama of 3. 1 girl and 2 boys. 10-3. Please reach out to me when you are here and I would love to help you in any way. Praying for your sweet family.

Shannon Oldham almost 2 years ago

Sending prayers for your loss & that this transfer will happen soon! Without God anything is impossible but with him all things are possible!

Ariel.r.young almost 2 years ago

Oh Kennidi. Deep in the valley of shadow! We love you and we’ll never stop holding you in our hearts and prayers.

Sjeads10 almost 2 years ago

I’m praying for y’all everyday. So is my whole Bible Study group and some friends.

Nicole Morse almost 2 years ago

Aww I’m deeply sorry for your loss and will keep praying for Oakley and for your loss and for your healing and she gets transferred soon and the proper care she needs and heart 🙏🏻🙏🏻❤️

Agibson almost 2 years ago

So sorry for your loss. I can't even try to imagine what you are going through but I do know that God has you all in His hands and He is working it all out for your good. Hang in there! Continued prayers for you all!

Preeti A almost 2 years ago

I am so sorry for your loss, I have been through a similar loss recently, so I could understand what you must be going through. I am praying for Okaley and will continue praying for her. With God all things are possible. Glory to Jesus.

Mary K almost 2 years ago

Hello Werley family! I came across your story a week or so ago and I wanted to let you know about an organization called Born Abel. Their mission is to celebrate children with complex medical conditions and offer support to their families. They have specific support groups for various diagnoses, a network of support for parents of medically complex children as well as those who have lost a child. Their website is www.bornabel.org if you'd like to check them out. (Or maybe you're already connected with them, in which case, disregard this comment.) Praying for your family as you navigate these changes and challenges. 💕

Karen Ruffner almost 2 years ago

Prayers for your dear family and so sorry for the loss of your precious little one. I know the pain is so deep and there are no words that can take away the pain. May God wrap your family in His arms and give you all strength to make the journey to TX. He will be with you and all will be praying for little Oakley. 🙏💕🙏

Stacey Marando almost 2 years ago

When there are no longer words, know that the silences are thoughts and prayers of all those who love and surround you💗💗

Cheryl Smith almost 2 years ago

Don’t give up hope. My friends grandson was in CHOP for almost a year (December is 1 year) waiting on a heart. He was sedated more than once and in the operating room to bed told it wasn’t a match. Well he received his new heart on November 1. Miracles do happen. I’m so sorry for your loss. I’m praying for you and your family.

Lynn Cook almost 2 years ago

Praying for her everyday!!!

Christina Werley almost 2 years ago

What an overwhelming circumstance, and look, God has guided you! I hope and pray she receives her transplant at the new hospital. Sometimes we have to take a leap of faith in order for the blessing to occur. We will continue praying for family and sweet girl. ❤️🙏🏻

Kate Stouten almost 2 years ago

I am so sorry for all this heartache, and now a move on top of all of that. Know that you all are in my prayers an will be praying specifically for the move and for peace for all of you.

Tricia Kubasko almost 2 years ago

I'm so very sorry for your heartache. My prayers continue for you, Oakley, your husband and son. God Bless.

Sheila Schippers almost 2 years ago

To this precious family. We are so sorry for your loss in the midst of all this. The Lord will prove himself faithful. I hope this may be encouraging for you. Last year at this time our 20 year old granddaughter was in the hospital in heart failure waiting for her heart gift. Now a year later we look forward to celebrating to celebrating her first heart birthday. She’s doing fine. We pray the move to the Houston hospital happens soon and goes well. We pray for your continued strength and Oakleys health as you wait. We pray for the perfect heart to be found for your dear Oakley.

Kim Kindig almost 2 years ago

I hope this will be the miracle y’all need. Take comfort in knowing you have an Angel in Heaven working on this too..

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