Next steps
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The Steinhaus Family
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The Steinhaus Family
It’s been a rough week, with a lot of developments—maybe an up or two, mostly downs.
Andrew has been researching clinical trials with open slots that target a different gene mutation (KRAS, present in about 90% of pancreas cancer patients) vs. BRCA (present in a very small percentage of patients). There is a lot of competition to get into KRAS trials, and for at least one promising trial, there are no open slots anywhere in the US.
We saw his NYU doctor this morning, and this is the plan for now.
We saw his NYU doctor this morning, and this is the plan for now.
- Restart chemo on Wednesday. Andrew will take the same drug combo as last year. We were concerned that he was mounting a resistance in the fall, but his doctor thinks growth was isolated and it’s worth retrying. We will watch the bloodwork closely and reassess often. Andrew is worried about the return of cold sensitivity and cumulative neuropathy effects. He already has constant numbness in both hands and feet.
- Continue to look for phase 1 or 2 trials that guarantee the investigational drug, as opposed to a randomized chance to get the drug or do chemo. We were put in touch with someone who works in research at a drug company and is trying to help find different trial options. This is much better than what we can do on our own, but the process is inefficient and difficult no matter who does it. NYU’s phase 1 team is advocating for him, but, again, the process for getting off a waitlist can be opaque, even if you work at a hospital.
- If the chemo stops working before finding an early-phase trial, Andrew will enroll in a phase 3 trial where you have a 50/50 chance of getting KRAS drug or second-line chemo. The second-line chemo will make him lose his hair, which he really doesn’t want. The treatment schedule is chemo three weeks straight then one week off.
Elyse Steinhaus
9 months ago
Comments
Deb Long
June Littlepage
The golden prayer bowls of heaven is being filled for you Andrew. Each family member is being remembered, loved, prayed for and cared for. Your lives have touched our lives and your needs and concerns matter. You are heard and you are loved. Thank you for the update and thank you for staying strong in the Lord. Remember the story from Daniel 3:15-28 like Shadrach, Meshach, and Abendego we are not alone. Deuteronomy 31 says, "Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you, He will never leave you nor forsake you." Will keep praying and look forward to the day we all meet in person.
Chris Reynolds
Praying for you all! God has a perfect plan. As you continue to seek Him in your seach with Andrew's doctors for the best treatment, He will faithfully guide you. I can't imagine how hard this journey is. Your faith shines through and blesses us all. I'm privileged to be praying from GA. May your faith continue to grow as the Lord upholds you with His mighty right arm. He promises He won't leave you and nothing can separage you from His love in Christ Jesus. Wisdom, strenth and peace be yours in Jesus, trusting Him for healing. Prayers and love , Chris
Mary Alice Cashin
Francesco Deluca
Teri Garner
Matt. 4:23 Jesus went throughout Galilee, teaching in their synagogues, proclaiming the good news of the kingdom and healing every disease and sickness among the people.
Praise God
Love all
Keep faith
Hope always
Debbie Smith
Richard Salsano
Joni Woolf