Support Registry Update

Round 4

In support of
The Steinhaus Family
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It's chemo week #4. We had a long appointment with Andrew's oncologist this morning before starting his infusion. Andrew's platelet levels were stable, which confirmed the decision to decrease the dosage of one of the chemo meds, irinatecan. He's continuing on the lower dosage today, and we'll likely stay there for the foreseeable future. They rechecked his CA 19-9, the tumor marker test, and there was another significant drop—this time from 989 to 384.

I'm trying to schedule his first round of CT scans for this Friday or Saturday to gauge progress since beginning chemo. His oncologist plans to take the images to the tumor board (a group of senior oncologists who review patient records and provide input) next Tuesday. The circumstantial evidence (CA 19-9 blood results and resolved pain) point to a good response, and we got about as solid of a prediction as possible from his doctor that we're likely to see positive results.

Andrew's been having a lot of good days. Last week, we took Vivian to the doctor downtown—she's having migraines and we're doing some tests to rule out anything more serious—and turned it into a fun afternoon. We rode the sea glass carousel at The Battery (that's what we're doing in the photo above), ate lunch and a snowcone, and bought an ugly and overpriced Elsa bucket hat from a street vendor. Andrew and I booked a short trip in October for our 10-year anniversary and are really looking forward to celebrating. He also got cleared-ish to drive by his cardiologist, so he's been having fun with that. Andrew is still Andrew so his fun downtime includes researching clinical trials that may be a good fit after another 4 rounds of chemo.

Andrew says he plans to write a guest post for the fans, so hopefully that is forthcoming.

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Comments

Meredith Conway

The fans look forward to Andrew’s guest appearance!
Rooting for the Steinhaus crew constantly!!
Love you all big time,
MRC aka YMB
  • over 1 year ago

Harley Duncan

Elyse, Vivian and Andrew,
Blessings to y'all. Who would have thought that Andrew would spend his down time researching clinical trials? Everyone reading this, I suspect.
  • over 1 year ago

Bob Cagle

Encouraging post! Still praying.
  • over 1 year ago

Richard Salsano

Love seeing positive news! Everyone is pulling for Andrew and hopefully the good days continue to dominate. Not surprised at all to hear Andrew’s fun downtime activities include researching. LOL. He is one of the few people I would trust if I heard the phrase “I did my own research”.

Always thinking of you guys. Sending warm thoughts and love.
  • over 1 year ago

Teri Garner

Tears of joy!!! Prayers of hundreds of Christians supporting the Steinhaus family.
All my live
  • over 1 year ago

Joni Woolf

What a brave and beautiful family! Think of you every day and pray for healing.
  • over 1 year ago

Kimberly Yates

I’m a big fan of all four of you!!!
  • over 1 year ago

Jennifer Paxton

Love to hear about the CA 19-9 drop, more good days, & planning for upcoming anniversary. (Has it really been 10 years since that wedding?!) Pumped for Andrew’s guest post!

Praying for y’all everyday! ❤️
Love,
Jenny
  • over 1 year ago

Mary Alice Cashin

So happy to hear Andrew is responding well to treatment and you have had some good days and plans for more to come. Hope all is ok with Vivian. Keeping you all in my thoughts and prayers.
  • over 1 year ago

Karell Roxas

I need an exact date of when Andrew will write his guest post so I can put it in my calendar. THE FANS NEED TO KNOW. I'm so glad to hear about all the good days. And the upcoming trip sounds dreamy. Love you both.
  • over 1 year ago

Mary McGill

I am a friend of your Aunt Teri. I pray for you everyday.
  • over 1 year ago

Mary Myers

Keeping Andrew and ALL of you close in my heart and prayers. We love y’all!!
  • 9 months ago