Yesterday, Abigail had an appointment with GI at the University of Virginia. Dr. McKinney increased her formula from 1200 mls to 1300 mls since she’s growing and more active. 

 

Over the last few weeks, I’ve been feeding Abigail through the G port instead of the J port—how she was fed before she got sick last summer—and she’s been doing well with it. Dr. McKinney now wants us to start doing bolus feeds during the day, which are feeds given over a short time instead of continuously. The goal is to get her to a schedule where she only eats during the day like the rest of us, which will help set her up for eating more by mouth after the surgeries she needs. 

 

I also asked him if an impedance test might be helpful right now, but he doesn’t think it’s necessary since Abigail hasn’t shown signs that her anti-acid medicine isn’t working. He did suggest possibly increasing her dose as we get closer to her reconstruction surgery. 

 

On our way home from UVA, the OR scheduler called to say there was a cancellation the week we leave for Boston, so Abigail could get her tonsils and adenoids removed then. But she doesn’t want us to cancel our Boston trip—she’s hopeful she can get Abigail scheduled for the surgery in early September instead. 

 

Please keep praying that Abigail continues to tolerate her feeds to the stomach and that the surgery timing all works out in her favor.