Abigail and I got back from Boston last night. I wanted to share an update after Abigail’s recent airway procedure this past Wednesday and what the doctors found.

The Main Problem

During the procedure, the doctors discovered that the area just above Abigail’s tracheostomy site is collapsing and mostly blocked.

The upper part of her trachea is collapsed completely from front to back (100%). On top of that, there is granulation tissue blocking about 80% of the airway in that area. Because the space is so narrow, the doctors were unable to pass a normal-sized scope through it and had to use a much smaller one.

These findings help explain why Abigail needs a major airway reconstruction surgery.

The Good News

There were also some encouraging findings. Several important parts of Abigail’s airway looked normal, which is a positive sign going into surgery.

This means the main issue is focused on the upper trachea near the trach site, rather than affecting her entire airway.

Other Challenges the Doctors Noted

The doctors also noted a few factors that can make procedures more challenging for Abigail, including:

These factors can make it harder to visualize and access her airway, but the doctors were still able to examine it using special techniques.

What This Means for Reconstruction

Abigail’s upcoming airway reconstruction surgery will focus on:

The ultimate goal is to create a stable airway so Abigail can breathe more normally and potentially move toward life without a trach in the future.

Other Encouraging Updates

We also had some positive news from her other procedures this week.

Abigail’s hearing test went well, and we learned that she can actually hear fairly well without her hearing aids when people speak to her in higher tones. Her hearing aids still help her a lot, but it was encouraging to see how much she can pick up.

She also received Botox injections into her salivary glands to help with excessive drooling. The procedure went smoothly, and we’re already starting to see it take effect as her drooling has begun to decrease.

We are incredibly grateful for the doctors who are helping guide Abigail’s care and for everyone who continues to pray, support, and encourage our family as we prepare for her surgery in under a month. Please continue to pray for wisdom and peace for Devin and me.