I’m sorry it’s taken me a while to update this page. We have been so busy with all of Bella’s things and all of the kids end of school activities. 

It has been a little over two months since we were able to get Bella back on insurance thanks to every single person who donated and shared our page. In that time she has seen three specialists. She has had a CT, labs (17 tests/tubes to check everything out!), an echo, and an EKG. Next week she sees the most important doctor on her team — her transplant pulmonologist — and she’ll get her PFTs and lung function testing done.

I cannot tell you what it means to be able to type that sentence.

It has been exhausting. It has been busy. And it has been so, so reassuring.

Bella has been Bella through all of it. High spirits. That smile that never quits. I can see the moments when she’s scared — even when no one else can I always can… even through her smiles — and we talk through it together and we get through it together. Every single time. That’s just who she is. That has always been who she is.

But I have to be honest with you all because that’s the only way I know how to be… but it’s so hard. 

We are starting to run low. We have enough for about one more month of coverage. The funds that so many of you so generously contributed are almost gone and we are not yet in a place where we can sustain this on our own. We are actively working on ways to change that — a few different things in motion — but it is going to take at least a couple more months before any of it makes a real difference.

So I am asking again. I hate that I have to. But I am asking.

If you haven’t donated, please consider it. If you have already given, please share this page. One share could reach the person who makes the difference for Bella’s next month of care.

She is so close to getting everything she needs. Let’s not stop now. 💜