August 1, 2026: What Life Looks Like Right Now

One of the things we are all trying really hard to do is meet Pippa where she is, rather than constantly thinking about the diagnosis.

That is harder than it sounds. Once you know there is a reason for the delays, it is very easy to start looking at everything through that lens. Is this Pitt-Hopkins? Will she do this? Will she do that? What does this mean later?

But Pippa is not thinking about any of that. She is just Pippa.

So we are trying to stay focused on the little girl in front of us. What she can do now. What she enjoys. What she is working on. What makes her laugh. What she needs help with today.

And we are trying to make sure Harper and Thea still get to just be Harper and Thea too.

They are her sisters. They love her. They are part of all of this, of course, but they also need their own time, their own attention and their own normal childhood.

The practical side of life right now is pretty full-on. There can be around eight therapist visits in the house in one week. That is a lot of people coming and going, a lot of appointments, a lot of exercises and a lot to keep track of.

And life around that has not stopped.

Ethan still has his military commitments.
Mollie is still teaching dance.
There are three little girls to look after.

There are meals, laundry, bedtime, errands, work, appointments and all the normal family stuff that still has to happen.

That is probably the bit people do not always see.
A diagnosis does not suddenly create more hours in the day.
Mollie and Ethan are having to fit all of this into the life they already had.

And the rest of us are trying to work out how best to help without making everything about Pippa’s diagnosis.

Sometimes that means helping with one of the girls.
Sometimes it means dealing with paperwork or chasing something up.
Sometimes it means being at a therapy session.

And sometimes it means doing something completely ordinary and not talking about Pitt-Hopkins at all.

Because yes, Pippa needs therapy and specialists and equipment.

But she also needs to be a little girl.

She needs her sisters, cuddles, music, play, family, silly moments and all the things that have absolutely nothing to do with a diagnosis.

That is what we are all trying to protect.

Not some perfect version of normal.

Just their family life, with all three girls at the center of it.