March 26, 2025
In support of
Jax’s Journey: Support the Dewitt Family
View Support Registry
Jax’s Journey: Support the Dewitt Family
From Jennifer:
"Today marks 2 weeks in the hospital. Things are not good. We are having neuro issues, dysautonomia issues, breathing issues, and metabolic issues. They are trying to take our homecare nurses and reassign them because leave been gone so long. If he doesn’t have one of these events on EEG(he’s had that while here but not on eeg) then I’ll get an emergency plan to try out by myself. Trying to figure out how how to manage everything. Honestly kinda sad today."
"Today marks 2 weeks in the hospital. Things are not good. We are having neuro issues, dysautonomia issues, breathing issues, and metabolic issues. They are trying to take our homecare nurses and reassign them because leave been gone so long. If he doesn’t have one of these events on EEG(he’s had that while here but not on eeg) then I’ll get an emergency plan to try out by myself. Trying to figure out how how to manage everything. Honestly kinda sad today."
Comments