March 24th, 2025
In support of
Jax’s Journey: Support the Dewitt Family
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Jax’s Journey: Support the Dewitt Family
Update from Jennifer yesterday:
"Jax had an MRT(Medical Response Team) called last night. Finally had a huge desat, down to 64, wouldn’t come back up despite 15L of O2, almost had a code called. Is now at watcher status and being followed by PICU CICOT team, and is being hooked up to EEG, as almost everyone thinks it neurological.
I will say, our nurse and the charge nurse both said it was terrifying, and asked if this was what I’d been dealing with at home by myself at night, which it is, although the lowest I have seen him go to is 69 at home. They said it was difficult to manage with the whole team, they couldn’t imagine being alone and managing it.
Suffice to say, we arent coming home anytime soon."
Jax and Jennifer are in the middle of every parent’s worst nightmare—watching their child fight, with no clear answers and no end in sight. On top of the emotional and physical toll, the financial burden continues to mount. Right now, donations aren’t just helpful—they are absolutely critical to keeping them afloat during this impossible time.
If you’re able, please consider making a donation to help ease some of the weight on Jennifer’s shoulders. Every dollar makes a difference, and more than anything, knowing they’re not alone in this fight means everything. Please also continue sending good thoughts and kind words.
"Jax had an MRT(Medical Response Team) called last night. Finally had a huge desat, down to 64, wouldn’t come back up despite 15L of O2, almost had a code called. Is now at watcher status and being followed by PICU CICOT team, and is being hooked up to EEG, as almost everyone thinks it neurological.
I will say, our nurse and the charge nurse both said it was terrifying, and asked if this was what I’d been dealing with at home by myself at night, which it is, although the lowest I have seen him go to is 69 at home. They said it was difficult to manage with the whole team, they couldn’t imagine being alone and managing it.
Suffice to say, we arent coming home anytime soon."
Jax and Jennifer are in the middle of every parent’s worst nightmare—watching their child fight, with no clear answers and no end in sight. On top of the emotional and physical toll, the financial burden continues to mount. Right now, donations aren’t just helpful—they are absolutely critical to keeping them afloat during this impossible time.
If you’re able, please consider making a donation to help ease some of the weight on Jennifer’s shoulders. Every dollar makes a difference, and more than anything, knowing they’re not alone in this fight means everything. Please also continue sending good thoughts and kind words.
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