Greyson did well with his bipap overnight.  Though he struggled with delirium and did not really settle to sleep until 5am.  

They trialed high flow today to give his face a break from the mask and to see how he would do.  He was starting to labor to breathe so they put him back on the bipap for better support. 

His liver numbers and bilirubin are continuing to climb.  They are wondering if it is from being too dry due to the lasix.  They are holding the lasix and cutting some of his medications down that may be affecting his liver. They are also considering that it may be GVHD of his liver so they may end up giving him steroids to help treat it. 

He has gotten to visit with his dad and older brothers. He is smiling, watching his movies, and reaching out to hold hands. 

Over the last couple of days, his port has been acting up.  They are completely unable to flush it or get blood return.  They believe it is bent and will be taking him down to surgery tomorrow morning to replace it. 💚🧡🎗️