Support Registry Update

23/100 Morning Update

In support of
The Corbitt Family
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The good news for today is that we are officially on day 1 of engraftment.  We have two more days of an ANC over 500 before he is considered engrafted. 💚

The skin biopsy showed a lot of inflammation in his skin.  We are still waiting on the infectious disease results of the skin biopsy but the inflammation has BMT thinking it is now a GVHD (graft-vs-host disease) rash.  They think that he already had injury there (the rash that started before transplant) and as his cells came in they took to the rash and made it worse. 

They are weaning his steroids very slowly. If any of these problems are GVHD, the steroids may be helping to partially treat them.  If they determine the rash is GVHD, they will add a medication to help treat it. 

He had a very big, loose stool this morning.  They are reaching out to Infectious Disease and sending samples out to determine if this is another infection brewing.   They are also considering if it is GVHD of the gut. 

They will do an echo tomorrow to take another look at the fluid around his heart.  They are also considering if this is GVHD. 

He is still not peeing on his own and they will likely put the foley back in today. 

They are planning to wean the vent today again if they can get him to start taking his own breaths. They are adjusting his sedation to encourage him to breathe on his own. 💚🧡🎗️

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Comments

Rita Spitler

Keeping prayer going for more good results.🌻
  • about 1 month ago

susan croxton

Always praying....for healing and for your hearts. May the Lord have mercy.
  • about 1 month ago

Barbara Rustine

Yes, praying. “We don’t know what to do, so our eyes are on You.” 2Chron 20:2
  • about 1 month ago

Dede Roberts

Lord, we ask for Your healing touch to rest upon Grayson. Bring comfort to his body, strength to his spirit, and peace to his mind. Surround him with Your presence so that he feels safe and loved. Give wisdom and guidance to those caring for him, and fill his family with hope, courage, and unwavering faith. Let them feel Your nearness in every moment. Lord, we trust in Your goodness and Your perfect timing. Hold Greyson in Your arms and restore him to full health. Amen 🙏
  • about 1 month ago