Words of Support

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Anonymous

Rooting for you all, all the way across America!

Anonymous

Safe travels!!

Anonymous

Excited to hear you all are going! I hope it's a great trip full of connections, learning & sharing. Hope Presley loves her first conference!

Anonymous

Sending love, patience, healing, and peace to you and your amazing family!

Jaclyn Burgwald

Airport Fund - So excited for you guys!

Kristi Winchester

We love you!!

Support Registry

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Provide a meal, groceries, or send funds for food.

Send a Meal

New Support Need: 2026 Malan Syndrome Family & Scientific Conference - We’re sharing a new support need for our family as we plan to attend the...

Volunteer Support is not requested.

Anonymous
Gave $200.00 (Largest Donation)
Anonymous
Gave $50.00 (Most Recent Donation)
Kristi Winchester
Raised a Hand for Meal after sleep deprived EEG on January 2