Support Registry Update

Update re: doctor and treatment suggestions

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The Blick Family
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Hi all! Quick update to share with anyone asking about Jonah.

The Blicks’ dear friends Adam Cohen and Lindsay Sikora are in contact with the doctors running clinical trials for Jonah’s diagnosis, and we are actively evaluating the best fit. Between those connections and the incredible team at CHOA, Jonah is receiving fantastic care and we are fully set on the medical recommendation front. 

For the time being, please hold off on texting or emailing additional doctor recommendations. We know every suggestion comes from a place of deep love, but our focus is strictly on clinical trials at this stage.

Thank you to the entire community trying to help them. We will share additional  updates as soon as we have a firm plan.

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Comments

sara speer selber 6 days ago

Please send me the specific diagnosis. My husband is VP of Access at MD Anderson, and I can ask him what they have for it and whether they will have something that can help

Cynthia Stanojevich 5 days ago

Thank you for the updates and the love you have for the family is a blessing.