Happy Wednesday! 

We are still hanging out at our least favorite all-inclusive, as I like to call it. 😂 I’m very grateful for sunshine this morning! It makes such a huge difference in the room.

We had to backtrack quite a bit on Monday when Landry stopped tolerating her feeds. She was in a lot of pain on her full feed volume so we went back to complete bowel rest on IV fluids. Thankfully her veins had gotten a chance to rest and hydrate and she got an IV on the second try. This isn’t the first time Landry has gotten a paralytic ileus followed by a virus so I wasn’t shocked. Essentially it’s where the gut slows down so much that it just stops functioning and the only treatment is rest and time. 

Yesterday, with help, she passed a small impaction from her lower colon and an x-ray confirmed nothing more was impacted higher up, which is really good news. We just have to wait for everything to wake back up. We continued bowel rest overnight and have started her back on J-tube feeds this morning as a trial, knowing we can revert back to IV fluids if need be.
I’m hopeful for success with feeds, but whatever keeps her comfortable will be what we do, as always!

Thank you, again, for all the prayers and messages. They are so encouraging. I also wanted to share, and some have already done this, you can get on the OSF Children’s Hospital of Illinois website and send a card to a patient. You don’t even need to know the room number.  They’re printed here and they bring them to the room once a day. I know people are always asking for things to do so I wanted to share that since it’s simple but really makes us smile! 

Thank you for loving our family so well! 

Love,
Lindsay